0

Amellias Captures

While trying to do the never-ending task of a mum & sort out the house for what feels like the millionth time I came across a whole heap of cameras I had been hording.
They all worked perfectly, but had been added to the pile as I got a new one so some were pretty old! After sorting through them and getting rid of the ones which were pretty useless I found one that wasn’t too bad and decided that I would let Amellia have it to see how she got on.

I must admit I did expect to have a camera full of totally rubbish pictures and yes of course there was a few odd ones.. I even have odd pictures on mine but I thought they would outweigh the good but they didn’t.

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There was a lot of random selfies, rather a few only had half her head in.. but they made me smile and she loved looking back through them and telling me why she took the selfie and where is was.

DSC02446.JPGSeveral of Dylan, because well.. she totally adores him.

DSC02450.JPGA few of views and the sky from our walkDSC02469 (2).JPG& this one that completely melted my heart. I was completely unaware that she was taking this and only when we came home and were looking at them did I see it. Look at how happy Dylan is with that perfect wee smile he has, along with his smile I actually like this picture of myself too. Maybe it’s because you can’t see my face.. but I totally love this picture. One I wouldn’t have ever got if I didn’t give her a camera.

Along with these pictures there was also several long videos of her waffling to the camera about what she could see out the window, what she was making with air dry clay, discussing the weather (Her favourite topic) and just general chit-chat.

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I think she is at the perfect age now to have a camera, it will teach her responsibility along with capturing some awesome memories. After she has been using it for a while I’m going to get her a wee photo album so she can print out the ones that mean something to her and she can then write a wee bit about them and keep them safe to look at whenever she wants.
I cant wait to see what other things she captures and will do another post in a while once she has been out with her camera again.

I have given her an Instagram account obviously on my phone and she will only use when beside me and i will monitor and all that jazz. But thought it would be perfect for her to get her pictures somewhere to look back at easily and write her own wee description! If you wanna see what she snaps in the future head over to it here and give her a follow!

-WeeOhana

8

Mars Bar Fudge

Last year we had some chocolate left after Easter and made some cornflake buns this year we decided to use what we had left to make mars bar fudge.
It is really simple and extremely tasty, it wont be hanging around in our house long!

Ingredients
-400g milk chocolate
-1 can of condensed milk
-3 Mars bars
You will also need
-Baking tray with high sides, baking paper & saucepan

Method
-Break up the chocolate and put it into the saucepan along with the condensed milk.
-Heat over a low heat until it has all melted.
-Take it off the heat & leave to cool for 15 minutes
-While its cooling chop up the mars bars into slices, make sure to keep one mars bar separate.
-Put the baking paper into the baking tray to make it easier to take out after its all cooled.
-Once cooled add two of the chopped mars bars into the mixture and stir.
-After stirring empty out the mixture into the baking tray and spread it out evenly.
-Add the final sliced mars bar to the top,

IMG_4543.jpgOnce cooled lift it out and slice it up then enjoy!

IMG_4545.jpgIf you fancy chocolate fudge instead check it out here
Or If you fancy a really different fudge to chocolate check it out here

-WeeOhana

 

2

A-Z

Recently First Time Valley Mam shared an A-Z of what autism meant to her, I thought this was a great idea and something I am going to try to do once a year to see what I have learnt throughout the year and how things have changed.

A – Autistic.
This word has crossed my mind for as long as I can remember, one that I am still coming to terms with and trying to learn everything I can about.

B – Battle.
Everything feels like a huge battle, we have to fight for so many things to get done at the right time to enable Dylan to have what he deserves at the right time.

C – Counting.
Numbers are a huge thing to us now, Dylan loves numbers and trying to count as he goes along. Often he will just be counting his foot steps as he walks along.

D – Dylan.
My wonderful little cheeky monkey. He makes me so proud and amazes me often, with that curly hair of his and cheeky smile what’s not to love.

E – Eating.
How can one of my children love food and the other have such a huge aversion to eating. It is a constant struggle to try to find food that he will eat that isn’t mince..

F – Friendships.
When something so huge happens in your life you really find out quite quickly who are your true friends, and then better still you go on to make friendships that are true.

G – Goals.
Something that I have found has been really important to helping myself keep a level head is setting attainable goals for Dylan. Ones that I know he will reach sooner rather than later, I feel if you set big goals that aren’t very attainable you end up beating yourself up about it.

H – Home
These four walls are starting to send me a little mad, Dylan is not one for going outside or to places he doesn’t know. We are back to even the park being a huge struggle for him, home is his safe place where he wants to stay 24/7.

I – IPad.
Something about those sped up, backwards, slowed down videos of the gummy bear on YouTube make Dylan’s world complete,  he loves his iPad and without it we wouldn’t be able to go anywhere. It seems to be able to help him zone out from everything around him.

J – Judgement.
I’m having to grow a thick skin very fast, you get so many judgemental looks and comments when you are out & about.

K – Knowledge
My knowledge about autism is ever-growing and I know that it will never stop.

L – Lines
Lining items up brings Dylan so much joy, but if you touch that line or move it you better be prepared to put it back as quickly as possible.

M – Meltdowns
With very poor means of communication Dylan has many meltdowns. He can’t tell us what he wants and we can’t explain anything to him, I’m hoping in time these will become less frequent as he grows older and we find a way to communicate.

N – Nonsensical
Recently Dylan has started babbling away to himself and I can not wait for it to start to actually make sense!

O – Obsessions. 
Dylan’s obsessions go far beyond what I ever thought an obsession could be. If he has a set of figures and loses one he gets very worked up extremely quickly. Thankfully nothing has gone missing for good so far.. normally they can be found under a sofa or even just sitting behind him.

P – Pointing.
This is something that I am working on teaching Dylan how to do, not something I ever thought I would have to teach a child to do.

Q – Questions.
My head is full of questions but as soon as I get the chance to talk to a professional somehow they just vanish as if by magic. I’m sure I will always have tons of questions floating around in my head.

R Repetition.
Dylan’s favourite thing is repetition, his play is repetitive, the videos he enjoys, what he eats, literally everything Dylan does and enjoys is based on repetition.

S – Sibling.
Recently the bond between Amellia & Dylan has grown immensely. Obviously it has to be when they are both in the right mood, but when it happens it is simply wonderful to watch them getting on and enjoying each others company.

T – Treasure.
I now treasure so many memories that others would not find a huge ordeal. These are so important to me and are what keep me going on a rough day.

U – Understanding.
To get through this all we have to be understanding as a family. We have to understand how it affects each of us, and help each other when we are struggling.

V – Verbal.
Dylan has started to use echolalia a lot when watching videos of his favourite things. We are hoping to expand on this in the future so that we can communicate with him and he can communicate with us to tell us what it is he wants or needs.

W – Worry.
This is something I do constantly. I have always been a worrier but now it has got a lot worse as I’m sure you can understand.

X – Xmas.
It was a rather painful time for us that Dylan just had no understanding whatsoever of what was going on, Amellia loves xmas and I hope one day Dylan will love it just as much.

Y- Yourself.
Something that I have lost during this whole thing. Becoming a mother changes someone greatly, but becoming a mother to a child with additional needs is an even greater change that I can not explain.

Z – Zips.
Something that Dylan finds rather distressing unless they are done up right to the very top.

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-WeeOhana

7

Honest & Open

Something I have always found important Is being honest and open with my children at a level appropriate to there understanding.

Recently Amellia asked me where she lived when she was a baby, and I told her that we used to live with nanny & grampy when she was first born, she then went on to ask who came to the hospital with me and I told her that nanny did. She looked at me a little confused and said that daddy came with me to the hospital for Dylan.

I then told her that we met daddy when she was only a few months old and that we moved in to his house after she had turned one.

She looked up at me very seriously and I was wondering how I would answer all the questions she might have but she just said one simple sentence that just summed it all up perfectly. “Well that makes my daddy an extra special daddy then because he chose me and wanted to be my daddy”

My heart melted, she couldn’t have got it more right. 💝 Ad loves her and treats her just like his own, as do his wonderful parents. She has an incredible bond with them all and is totally spoilt rotten.

39

Zimpli Kids product review & giveaway!

My kids love some sensory play, so when Zimpli Kids got in touch with me asking if my kids would like to try out a few of their products and do a giveaway I jumped at the chance.
When Amellia got home from school I told her that she had some items she had to do a review of for my blog and she couldn’t wait to see what we had been sent.

IMG_3123As soon as she saw the Gelli Baff she was busting to try it out, apparently all the ‘cool’ people she watches on YouTube have been doing it and they all love it so she already had high expectations for it! I had my fingers crossed it would live up to these expectations so that she wouldn’t be disappointed.

IMG_3137Does this look like a face that was disappointed?
She had an absolute blast, and really enjoyed herself. She thought it was absolutely incredible, I on the other hand was worried it would be very messy and a nightmare to clean. By some miracle though she kept it all in the tub and it came with a little packet of powder you poured into it to turn it back in to water which happened almost instantly when you put it in and a huge plus is that it is 100% biodegradable. It also smelt amazing and is even ok to use for kids with sensitive skin!
The downfalls of this product is that you cannot put your head into it.. and that she now wants every bath to be just like this one!

The next day we also used the Crackle Baff which Amellia & Dylan could both enjoy. They smelled really great and cracked & popped for a lot longer than I expected. Both kids really loved these too.

On Saint Patrick’s day we decided to go with the green theme and try out the slime that we had been sent seeing as it was green.
IMG_3888I wasn’t quite as impressed with this. Amellia had a blast, but to start with I used half the amount of water that they suggested.. mainly because I wasn’t sure where I would get a container big enough for what they suggested so I thought we would try it and just have really thick slime. It took it a very long time to get to a slime like thickness & was still rather runny, but Amellia really loved it.
Dylan refused to touch it.. he’s not that into messy play.

She played with it for a long time, and as the day was reaching an end.. it ended up all over the kitchen floor. Fortunately we have tiles.. it’s not something I would want to tidy off carpet. It wasn’t too bad to tidy thankfully! I threw a few towels over it and then stuck them in the wash after making sure it was all soaked up as it did make the floor very slippy.

All in all we really enjoyed the products and if your kids are into messy play I would really recommended trying some of their products out.
If you fancy winning some enter my give away that is running until the 4th April 2018.
This giveaway is only open to people in the UK & Ireland. Good luck!

 Click Here To Enter

-WeeOhana

 

*_* These products were sent to me free of charge to do a review & Giveaway. All opinions are my own honest ones.*_*

2

CDC Again..

Think this was our 4th, maybe 5th CDC with Dylan. When I was told that it would be a different paediatrician than my normal one who has seen Dylan since he was 16 months old I was a bit annoyed. I was told that they didn’t know when she would be back in so I obviously took the appointment that was offered to me to help to progress through everything.

Whenever we attend any appointment with Dylan we tend to wait in the car until two minutes before the appointment to go in. This is due to Dylan getting extremely worked up if we have to wait in a strange room with other people in, so we have found that this is the best way to ensure that he keeps nice and settled before hand. When we went for this appointment though they were 20 minutes late. Dylan waited a lot better than he ever has at the very start but then he started to get more and more anxious and after 10 minutes I was back to doing the usual of walking up and down the hallway trying to stop him screaming and to calm him. Ad went out to ask them what was going on and was told that at the start of every CDC they always discuss for 20 minutes. Now I have been to my fair share of CDCs and this has never been the case and was even more frustrating knowing that they were in that room beside the waiting room with the two-way mirror being able to hear and see how worked up Dylan was getting.

Eventually they came to get us and it was the new paediatrician that we hadn’t ever met, as soon as we sat down she asked such a ridiculous question especially seeing as they had supposedly been chatting about Dylan for the 20 mins we were waiting .. she started off with-

So, what are you concerned about?”


I just started to cry. Not huge sobbing crying because I was keeping myself together in front of everyone but I looked at her and replied with one word – Everything. 

I composed myself a little, but I did go on a little rant. I wasn’t mean, or rude I just expressed how frustrated I was by everything that is going on. To be honest I think I have every right to be frustrated and everyone in the room said at the end of my little rant that they could honestly understand why I was so frustrated.
Dylan was first seen at the children’s centre when he was he was 16 months old, he was referred at 13 months old. Even from the very first appointment we have been told that he is autistic and that he would need to attend a special needs school.
When we first went we were told that it is great that Dylan got referred so early as Early Intervention can make a huge difference to a child… but we have seen none of that. Not a single thing until very recently when speech therapy started 2 weeks ago.
We have also been told that the waiting for an official diagnosis is a lot longer than it is meant to be. You are meant to be seen and have the diagnosis within 12 weeks of doing the parent interview… we have been told that it will be a 9+ month wait.
I mean, we need this official diagnosis as much as professionals keep telling us that he is severely autistic my heart and mind are going through daily and sometimes even hourly battles over this. This is destroying my mental health, putting huge strains on our relationship and causing out family to suffer.

We were told that he may not get a place in a special needs nursery because the wait list at the moment is really long to get official statement done and we were told to not get our hopes up for him to get a nursery placement.
I mean COME ON!! We were apparently referred at the earliest stage possible to the education board so that we could get this done and sorted and not have to fight and wait for this like everything else, but now we have been told this. What the hell else am I meant to do?

Everything is just not right and something needs done about it.
Who can I contact for help?
I need this all sorted so I can then concentrate on sorting myself so I can be the best mother possible to my kids, to know how to help Dylan the best I can… This isn’t fair on our family and many others I know going through this.

Also, to add, Dylan needs a new high chair, he is too heavy for his current one and without being strapped in Dylan will not eat food. He does not seek food or enjoy food, but the NHS will not provide us with one or even help us to get one because it is classed as a restraint. Same as a car seat, its classed as a physical restraint but they have told me that they know Dylan needs one as he escapes from a seatbelt and that it isn’t safe.
Since when did a child’s safety & well-being stop being the main concern??

Sorry I went off on a bit of a rant… but I hope you can understand why, and if you know where I can go for support and advice to push these things further forward please do get in contact. 

-WeeOhana 

12

My Sunday Photo – 17.02.18

We were up and out early this Saturday morning to ensure that we could enjoy the day as much as possible. We headed off to Castle Espie and it was wonderful. We had lots of fun exploring, puddle jumping, looking at the views, enjoying the birds and all of the things Castle Espie had to offer.
Here are a few of the pictures I captured while we were out & about.

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