3

Amazing & almost unbelievable progress!

This medication is seriously a life changer and for all the positive reasons!

So for the first week in school they noticed improvements but since going up to the 20mg we are being blown away by the changes. She is sitting to do her spellings, numeracy and literature work with only needing a few reminders to keep on task rather than constant ones. She is actually enjoying doing her work and is coming home really proud and eager to show me what she has done and how neat her writing is, which has come on leaps and bounds! Before her writing was pretty unreadable, now you can actually read what she has wrote and I am sure that in a few more weeks time with practice her writing will get even better.

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The even huger thing is that she was seen by her physio and she has discharged her! They thought possible dyspraxia when we first went to see her paediatrician as she couldn’t do simple things like stand on one leg for any length of time or walk along a line of tape, but now she can do it all so well the physio says she is actually ahead of peers for her gross motor skills!

Her physio is just lovely and said that she was so happy to be discharging her but also didn’t want too as Amellia is such a pleasure to work with and is full of character and love. She said that she has never seen such an improvement in a child from taking the medicine and that Amellia’s ADHD must have been affecting her immensely.

The only side effect that is currently around for her is problems with getting to sleep. This is something she struggled with before but it has got worse. We have bought some relaxation tapes and she has been prescribed melatonin but I’m only going to give this to her on school nights after she has tried to get over to sleep by herself first.

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She is still 100% herself, outgoing, chatty and full of love for life but able to focus now to have a proper conversation with you. It is simply amazing and to think when the idea of ADHD was first floated I wasn’t sure about medicating due to the worry of it changing her personality, that when I said to people I was going to give it a try and they thought I was crazy.

These changes are amazing and going to help her achieve her best in life that she can! This girl is going to do big things, I can just feel it!

 

2

Week 1 of medication!

They decided the best medication to try Amellia on first is Equasym XL.
It is a modified release stimulant, it starts to work within 30 mins of taking it and is then out of the system in approximately 8 hours. The reason I like this medication is that she can go without at the weekends as it does not need to be built up in the system over a course of days or weeks etc.

Amellia has started off on 10mg for the first week, will be going up to 20mg for the 2nd week and then up to 30mg to see if she gets any side effects and what helps her best. At the review in 6/8 weeks we will then discuss how these past few weeks have gone and how Amellia has felt about it all.

I know I have sang there praises here before but her new school is absolutely incredible. I really hope that her P4 teacher is as supportive and amazing as her current one. she is more than willing to give all the help, advice and everything in between that she can. I think that half the battle is getting the right teacher, especially when going through the process trying to get the right dose/medicine etc.

The first week Amellia was convinced that I had got her tablets mixed up with vitamins as she saw no difference in herself which is a positive. The only side effect that seems to be here at the moment is that her sleep has been effected, she has always struggled with getting off to sleep but this has made it a lot harder.
We didn’t notice any differences at home, but it only really works for a short period of time which is when she is in school. Her teacher though came out on the first day amazed! Said that for the first time since Amellia started the school she sat and wrote her spellings out all my herself without being prompted continuously to keep going and it was legible! They certainly were making some difference, and her personality was exactly the same!

Now we are up to 20mg to see if this helps her further and if it can help her interaction with peers and to sit for that little longer to be able to do worksheets etc in school.
Fingers crossed we continue on such a positive note with this journey!

-WeeOhana

 

10

The start of a new journey!

We started this year off with a rather big and unexpected thing.

Amellia had an appointment with a pediatrician to see what they thought and how to best help her in day-to-day life. Seeing as this was her first appointment I assumed that it was just going to be a chat with the paediatrician about our concerns, getting a first impression on Amellia and referring her on to a long waiting list if she thought necessary.
No referring on, no come back in a few months,  no we want to get in touch with the school and see what they say, we walked away with a diagnosis, a prescription and a review in 6/8 week to see how it is going.

Amellia got diagnosed with ADHD.

The pediatrician said that it clearly affects her every second of every day and that she needs the help as soon as possible to help her achieve all that she has. I was also told that they think she has dyspraxia, a social disorder, sensory issues and a learning difficulty. Though we are going to get her medication right and let her get adjusted to this before they investigate the others as this is the one effecting her the most at the moment.

It was a tough day for me as I said before I thought it was just for a chat. I suppose in reality we were expcting the diagnosis at some stage, but not that day and not along with the other things too. My mind is all over the show at the moment and sometimes I want to just cry and others im just so glad we have got her the help she needs and hopefully now once we have the medication sorted she will be able to achieve all she is capable at school and in life.

One thing that I am adiment on and that I made very clear to the pediatrican is that if I feel the medication is changing her personality I will be stopping it. I want it to help her settle etc but I do not want her bubbly and fun loving personality to go. She reassured me that we would find the right medication for her to keep her personality.

What I found incredibly amazing from Amellia and showed just how self aware she is was when the pediatrican asked her how she coped in school and Amellia said she wished she could sit still longer to learn and that she got annoyed at always having to move.

Amellia is aware about her diagnosis and about the tablets that will help. I have also made her very aware that it may take a while to get the right dose. We have also started a diary that we are doing together each night to keep a check on how it is making her feel and how she feels about it all.

Over the next few weeks I’ll share more as I come to terms with it and how the medcine etc works for her, how she feels about it all etc to help anyone else who is in or goes through the same thing.

-WeeOhana