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Fell off the wagon, back now.. Sorry!

First off, sorry it has been so long since I have blogged. We have had a lot going on and I kinda fell off the blogging band wagon, but here we go with an update and trying to get back on the band wagon.

Dylan currently does not have a school place, due to no school suitable having a place. This means that we are having to home school him for now until a place does come up but no one seems to be able to give us any clue of when a space may come up or offering us advice on what we should be doing with him while he is at home.
Mainly I have been trying to work on his self-help skills and eating. Encouraging him to learn how to turn the tap on, put soap on his hands and wash them properly, we attempted potty training again for a good few weeks and he just couldn’t get the whole needing to go thing so we have put that on the back burner for a while until he is ready and notices more of the signs. Making food a little fun with trying to encourage sensory play with food, just touching a new food before having one of his safe foods and getting out and about in the world.

He is starting to put weight back on instead of losing it so we are celebrating that greatly, even though it took 4 months to put 0.2kg on it is a plus instead of a loss. He now has the majority of his safe foods back, minus the mince but I am not giving up hope on that and have my fingers crossed it will be back shortly, or maybe some other form of meat and goodness!
Verbally he has came on, and it is incredible to watch him as when he was first seen we were told to not expect him to talk. His favourite thing to do is walk around counting, Dylan is at his happiest when numbers are involved. Encouraging his numbers in everyday situations and trying to do things that involve numbers but aren’t just counting or adding is something I have been trying to do. Sensory play but with numbers in that his has to get out, colouring in numberblocks, dot to dot to make a numberblock.. basically anything that I can put numbers into to encourage him to do it I am.
He has also have seen an OT recently which I wont go into here but will do another post about along with all the other things that have been going on with him and expanding on what I’ve already mentioned.

Amellia has started P4 and it is not going anywhere near as good as P3 went. She used to wish the weekends away so that she could hurry back to school to see her teacher and now she wants the weekends to never end. Neither are ideal, I mean I would much rather she enjoyed her weekends and her time in school so a happy medium of the two would have been perfect. Maybe one day she will find that, but for now I am reminding her I am here to chat to no matter how she feels and that if she keeps persevering it may start to get better sooner than she expects.

 

We have been enjoying a lot of family time and getting out and about together. I am hoping that the winter isn’t too wet so that we can keep exploring and enjoying these times together as indoor places are not Dylan’s favourite. Indoor places tend to be busy and noisy making it very hard to go as a family as what often happens is one of us ends up leaving early while one stays in with Amellia. This in turn causes upset to everyone as Amellia wants us to spend time together, Dylan ends in meltdown and as parents you feel guilty at having to go separate ways and defeated.

Here is to a winter where we can still go out in the open without getting too wet or cold and being back on the blogging band wagon as it is something I really enjoy!

-WeeOhana

 

 

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Sensory Screening Cinema Experience

The last weekend of the Easter break for the kids from school and the rain started to pour. I didn’t want to spend the weekend stuck in the house so while pondering what to do I thought I might take Amellia to the cinema if anything was on. While I was having a nosey I noticed a movie that looked like she would enjoy and my heart ached a little as Dylan had never experienced the cinema before, when I came across a sensory screening of the movie. I had a quick chat with the hubby and we decided to go for it, and if Dylan really couldn’t stand it one of us could stay with Amellia and the other head home.

With it being a rainy day I was then worried that others who didn’t really need to go to a sensory screening may go to this as something to do with the kids in the rain but the cinema had it perfect. This one started at 12 and a regular viewing of the movie started at 12:10, great! Whoever was in the sensory screening was going to be people who needed it and would hopefully be understanding if Dylan wasn’t best impressed, this gave me enough courage to book the tickets and get everyone ready to head out to the cinema!

With a bag full of Dylan & Amellias favourite snacks to keep them occupied we headed in to get some popcorn. With a bit of a queue forming behind us I was worrying that it was going to be a bit of a busy screening, but once we headed into the screen we were the only ones there and it stayed that way. Who doesn’t love being the only ones in the cinema!

What a sensory screening means is that they turn the volume down and have the lights on. Unfortunately though the adverts before hand didn’t follow suit and were still full volume and Dylan found this extremely distressing. He was shouting for home and banging his ears and head. He then took my hands and put them over his ears and seemed to relax a little. Thankfully we were the only ones in this screening because by the time the adverts had finished Dylan was adamant we were going home but I wanted to try and get him to stay until the movie started with the bright colours and quieter sound to see if he would enjoy it.

With him pressing my hands tightly over his ears by his request he started to relax as the volume went down and the bright colours and sing song ways of kids movies started.  He shouted home a few more times and I decided next time he asked I would take him. After a few more minutes he got off my knee and looked like he was going to make a bolt for the exit, I’m pretty sure he was until he spotted the numbers on the chairs.
Thankfully with it being an empty cinema we left him to his own devices walking up and down the chairs looking at the numbers and bouncing the chairs as he counted.

He lasted the whole movie!!
This was such a positive experience for us all; Amellia totally loved the movie, complained that it wasn’t long enough and sitting still really isn’t her thing and even though she could have wandered while watching she sat perfectly still the whole way through. Dylan enjoyed his first trip to the cinema, maybe not in the expected way but he enjoyed it in the end and we all got to have a family afternoon out doing something we haven’t done before.

Thank you Omniplex for making these sensory screenings so that people who struggle with full volume and darkness can enjoy something that others do on a regular basis. We will be back in the near future, so many kids movies coming out this year that me & the hubby had long discussions over who was getting to see it in the cinema with Amellia but now we all can!
I also highly recommended the movie Wonder Park, it was amazing  and one we will be buying once it is released on to DVD we enjoyed it that much!

 

 

 

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2018 has gone too fast!

I hope 2019 goes slower than 2018, This year seems to have just flown by at an alarming rate and I’m not sure how I feel about it!
Adrian and myself have been married 5 years this January, Amellia is now 7 and Dylan is 4 next week!

They say time flies when your having fun, I think our time had flown because we have been so stressed and had so much going on! This year especially I feel like I haven’t had a moment to think or process anything that has been going on.

Amellia has changed to a new school which is absolutely incredible, and in a completely different league to her old one.

Dylan has started nursery with a very rough start but seems to be enjoying the morning class a lot more so is sorted for a little while.

Amellia got referred to a paediatrician who we will be seeing in February, and has been seeing lots of therapists throughout the year.

Dylan got his official diagnosis and is now starting to say words! This time last year he didn’t even attempt to say or make any meaningful noises so it is absolutely incredible. Never give up hope.

We added two little guinea pig buddies to our family who are totally adored by us all and have the quirkiest little personalities and enjoy squeaking at us every time the fridge is open.

Adrian & myself got out for one night together without the kids, drank too much and ended up forgetting half of the evening. What we can remember was a great time though and we thoroughly enjoyed.. next year if we get out together we will try and be more controlled with the drink. lol!

Amellia has shown us just how incredible she is at spelling and is making us super proud by achieving top marks every single week.

Dylan now has a huge love for Duplo and is constantly building towers bigger than himself and knocking them down.

To round it up, its been a very stressful year full with many high highs, and low lows. Hopefully 2019 will have a few more level moments for us to catch our breaths and we will be able to continue to do what is best for our kids and maybe if we are really lucky get two nights out together!

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Halloween

I’ve never really celebrated Halloween before, the past two years Ad has took Amellia out to do some trick or treating but I haven’t really got in the spirit of it and left it up to those two to do together, but this year is different. I’ve decided for the first time I’m going to celebrate with them!

Time goes really fast, far too fast. It feels like this year has gone faster than normal to me so I want to embrace all the opportunities we get to spend together and if it means opening up to new things and trying them out well.. I’m going to give it my best shot for the kiddos! Soon enough she will be charging out the door to her friends rather than wanting to spend time with us, so time to make the most of the times we do have together and she wants to spend with us!

For her birthday party this year she has asked to have a Halloween party with her friends in the street so I said why not! I’ve been out and bought lots of decorations, a pumpkin piñata, light sticks, stickers, Halloween shaped crisps/chips/chicken nuggets and everything else I could find! These kiddos will not be leaving with an empty tummy or an empty bucket anyway.

I’ve bought us all matching jumpers which we will wear all the way through to January! The wonderful elephant bum and teequo worked together on them and I’m totally in love. I always buy jumpers from elephant bum and have only recently found teequo after getting these and they will be getting an order soon from me because they do Disney ones & I totally adore Disney! 😍 check out how awesome these ones are that we all got;

Anyway I’m off to decorate the house and get into the Halloween spirit 😀 how do you celebrate Halloween?

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School Fun!

This past week has been all about getting into the swing of being up and ready early on and trying to work out the best time to leave to get to the schools at the correct time and still be able to park! We have got a hang of if now and are ready to rock this school year!

Amellia has been going in fantastically and is absolutely loving her new school! She told me that she wishes there was no weekend so that she could go to school everyday. On Monday she did have a little cry going in but the teacher came over and chatted to her about her coat and then took her by the hand and they headed in, I think after the weekend she was just thrown a bit, she really strives off a routine so once she gets into the swing of it again she will be grand.

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Her changing school has really been one of the best things I have ever done. My only negative about it is that I wish I had done it sooner. This school is providing her with so much more support and help than she ever received at her previous school. They are also keen to get everything else rolling to be able to provide her with even more help and support. She got 20/20 on her weekly spelling test and was over the moon, we are super proud of her and even more importantly she is really proud of herself and was so excited to tell everyone.

Dylan still isn’t really loving going into school, they have been trying putting him in a buggy to get him to the class as they can’t lift them Incase they were to trip and fall and cause the child to then get an injury which I completely understand. He too found it even harder on Monday and I reckon that is because he had been off for the two days and had got back used to that, but hopefully soon he will learn that school is great and he gets those two days off to be with me.

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He seems to be a bit hit and miss with how he settles once in the class. One day it only took him 15 minuets but then the next day again he was back up too taking a long time to settle so it really is a take each day as it comes type of thing he always comes out happy and smiling when he sees us so that makes it a lot easier, not sure I could leave him if he was coming out crying too!

Hope your little ones and you are settling back into the school routine ?

WeeOhana

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I hope it gets easier..

Thursday was the first day for both my kiddies and they couldn’t have had more opposite experiences to the whole school thing.
Amellia absolutely loves her new school, on Friday morning she was dancing in my car with excitement before going in (which you may have seen on my insta story) and she has said that she wishes the weekend was only one day so she didn’t have to wait to go back to school. I just hope she continues to love her new school, they are offering her so much support and that is bound to help her settle and enjoy school more.

Dylans experience was the complete opposite. When we were walking down the hallway to his classroom he was fine and waited for his friend to catch up with him and I was starting to think it was going to go really well and he was going to love it, but as soon as we turned to walk through the door he would not go through and climbed up me as quick as possible while spontaneously exploding.
I carried him in and tried showing him some of the fun things they had out to play; sand, colouring, paint but nothing would settle him so they suggested putting him outside into the playground to see what he made of that. While they hurried him outside they told me to go. . as heart-breaking and as much as I really didn’t want to leave I couldn’t just ignore what they told me because in reality they have done this before and know what usually works best.
The parents then had a wee meeting to get to know some of the staff in the school and what they could do and provide for the children. After 45 minutes one of the classroom assistants came along to tell me that Dylan was settling for 5 minutes, remembering and looking for me and then settling again. After another 15 minutes they then brought the kids back to us and it was time to go home. As soon as he saw me he just kept repeating “mummys car” over and over again, he was more than ready to go home.

The next morning I woke up too carnage. Dylan had decided that doing a bit of poo art was the right thing to do, normally he shouts in the morning which wakes me up but he decided not to alert me and have a bit of a dirty protest and wake me with the smell. It was absolutely vile. I had my fingers crossed that the smell was going to be linked to something secured in his nappy but no such luck. I’m still scrubbing at the stains that refuse to budge! As soon as he saw me he started shouting “no school” over and over and over again.
I got him cleaned up, brought him downstairs and calmed him down. Amellia went to school dancing and singing then it was time to take him to school. After getting part of his uniform on I gave up, imagine wrestling with a alligator to put clothes on, Yeahh.. that’s why I gave up after he was decent.
The whole drive to the school he was going crazy in the back of the car, trying to undress, banging his head, hitting his legs etc.. I was waiting for him to fall asleep he was getting that worked up, but he didn’t.
Pulling into the carpark, walking to the class he was just going absolutely berserk. I had given myself a pep talk that it would be ok, they know what they are doing.. but it didn’t work.
They more or less had to remove him from me finger by finger. He was clinging on for dear life. It was absolutely horrendous. I just wanted to scoop him up and run away and never look back. I ended up in tears as they took him from me, it was such a horrible experience.
They came down to the room where we were meeting other members of staff after 40ish mins and said that he was doing the same as last time settling and then remembering again. This time at least when they brought him back to me he didn’t seem quiet as distressed but was busy shouting bye to everyone because he just wanted to be gone. He fell asleep as soon as he got into my car, which is only something he does when he is really worked up so that sort of summed up the day for me.

On Monday they are going to see how he gets on and have said that they will text/call me when they need me to pick him up. I’ll be sure to let you know how the next week goes.. at least on Monday I can sing to them “It’s my birthday, I can cry if I want too” so I wont look quite so bizarre crumbling into a heap on the ground in tears.. maybe that will make me look crazier actually.. oh well.

Wish me luck!

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Drumawhey Junction Railway

We have drove past this place many times but it either isn’t good timing for us to stop or it is closed, so when I drove past the other day and saw the opening times for the summer I decided that we had to take Dylan too it with his love for Thomas!

Ads parents took Amellia out for the day so we decided that we would take Dylan along to Drumawhey Junction Railway to see what he would make of it and to see what all was there.

When we got there we were greeted by a lovely man in the ticket shed who explained to us the prices, how the family pass worked and what was going on. We were amazed at how great the prices were and couldn’t wait to get on one of the trains.

Thankfully the place was very quiet so we got to get on the train as soon as we got there, we had no clue how long the track was, or what we would see but we had our fingers tightly crossed that Dylan would enjoy the train ride and not go crazy or try and get off mid ride.

He loved it, and so did we. The track was a whole lot longer than we expected and we went round it a few times, each time we spotted something new. Ornaments were hidden all around, ones of animals, Disney characters and some beautiful scenery. It was really lovely.

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We then went on a different train around the track again. We all really enjoyed ourselves and it was a lovely little afternoon. If you have a train loving little one I really do encourage you to go here!