1

Flying!

I was rather worried about the flight because Dylan has never been on a plane and although Amellia has been on a plane it was only ever for short flights. Amellia is a high energy kid so sitting still is not her strong point so I made sure I had a bag packed with lots of new and exciting things for her & Dylan, you can see what I had in them here.

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We were flying from Dublin airport and they were more than accommodating, we got checked in easily and got to go through the priority lane for security which made things less stressful for Dylan as we didn’t have to que up. I also brought Dylan’s melatonin with us through the security and with it being over the 100ml I had a doctors note with me, but they said that wasn’t necessary, all they had to do was check the medicine in the machine and that they wouldn’t take anything of a child that is a necessity to make there travels as stress free.

We got to bring the buggy with us right up until we boarded and it was ready and waiting for us as soon as we got off too which was great. Everyone in the airport were amazing, friendly and more than accommodating but that than changed when we got on the flight.
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We boarded first and as soon as we took the first step onto the plan Dylan lost it. In hindsight we should have boarded last so we weren’t sitting on it while everyone else walked past us, but we thought if we got on first he would have time to settle, but he did not. The flight attended did not help the situation at all. Dylan was clearly visibly upset, he was screaming, tears running down his face and he just wasn’t a happy bunny at all. He insisted that he had to sit in his own seat and I explained to him that he was autistic and did not understand what he was saying to him but he kept saying to him, its only for five minutes, you have to sit in your seat. I tried to put him in his own seat and this obviously just made him more distressed. I had my mum on lookout then for when that flight attended was going to walk past as there was no way I was going to make Dylan stay in his chair. I was in tears with how upset he was, it was horrible.

I gave him his melatonin to try and get him to sleep because he was not happy and nothing was settling him, after his melatonin he got a little distracted doing stickers which helped him settle for a few minutes at a time, he then ended up crying himself to sleep and then slept the rest of the flight. I managed to get a little bit of a kip but not much as he was very fidgety and kept waking for a few minutes and needing reassured then went back over.
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On the flight home Dylan was more or less a sleep before we got on the plane so was perfect. I sang a few songs to him on the plane and he quickly fell asleep and slept the whole flight, night time flights are the best!

Amellia was an absolute gem. She was far too excited to sleep on the flight over and was having lots of fun going through everything in her bag, watching movies and chatting to grampy. She then decided to fall asleep.. 15 minutes to landing.
On the flight home she was wonderful again and we had a far nicer flight attended, she spent ages chatting away to Amellia and even brought her a special kids dinner too!
After having some food Amellia then curled up on nannys knee and fell fast asleep for the rest of it!

So; if your flying, make sure you pack a lot of different things in your bag that you know your kids like, if they have special needs make sure you make the airport aware of it, show them pictures and watch videos of airplanes to try and help them understand what is going to happen and hopefully you get a nicer flight attendant than I did on the flight out so they will be understanding!

-WeeOhana

0

Holiday!

I’ve been rather quiet on here as of recent, so here is a quick and short update as to why! I was off on the most amazing holiday in Disney World!! It was the most incredible holiday I have ever been on, and I am going to do a few posts for others who are heading over to have a bit of insight of the things there, how to get the disability pass they do and lots of others bits of advice.

What made it even more exciting was that we didn’t tell Amellia about the holiday until the day we were going. We went with my parents so we headed to there house and I told her we were just staying with them for a week so that she could get some quality time. Once we arrived I got Amellia to ask my dad what he had planned for us and he told her, she could not believe it. She asked me about 20 times “are we really?” Then my mum took her to see her and my dads suitcases and she went crazy! It was a really magical moment. They then took her over to the park while Dylan was happy pottering around the house to waste some energy before a crazy long flight!

I can’t thank my parents enough for making this holiday possible and so incredible. It was the break that I needed, seeing everyone happy, smiling, laughing and having the best time ever. Memories that we are all going to cherish forever.

Family are amazing. My family mean the world to me and I’d be lost without them.

-WeeOhana

7

Honest & Open

Something I have always found important Is being honest and open with my children at a level appropriate to there understanding.

Recently Amellia asked me where she lived when she was a baby, and I told her that we used to live with nanny & grampy when she was first born, she then went on to ask who came to the hospital with me and I told her that nanny did. She looked at me a little confused and said that daddy came with me to the hospital for Dylan.

I then told her that we met daddy when she was only a few months old and that we moved in to his house after she had turned one.

She looked up at me very seriously and I was wondering how I would answer all the questions she might have but she just said one simple sentence that just summed it all up perfectly. “Well that makes my daddy an extra special daddy then because he chose me and wanted to be my daddy”

My heart melted, she couldn’t have got it more right. πŸ’ Ad loves her and treats her just like his own, as do his wonderful parents. She has an incredible bond with them all and is totally spoilt rotten.

4

Don’t dwell…

Must Not Dwell.. (1)

I have started 2018 with a bang and completed my online course that I singed up too to extended my knowledge on autism with a pretty impressive 100% on all modules.
I am pretty chuffed and it sure has given me a nice little boost of pride and self-confidence to start the year with.

The course I completed was compiled of these modules;

  • Understanding autism
  • Autism and communication
  • Autism and sensory experience
  • Autism, stress and anxiety
  • Autism: supporting families

I found out some facts from doing this course that I wasn’t aware of, but the majority of it I knew from living daily with an autistic child.
I think this course would be beneficial for people with very minimal knowledge on autism, but if like me you live with autism in your life daily then it probably wont provide you with much extra.

I learnt some facts that really shocked me and admittedly scared me too.
Did you know that only 15% of autistic people are in full-time employment? 75% of the population are in full time employment.
I mean.. how crazy is that, and how does that give me any hope for Dylan. It seems absolutely bizarre that the percentage is so low and really unsettling for parents of autistic children.

At least 1 in 3 autistic adults are dealing with severe mental health struggles due to lack of support. 70% of autistic adults believe they are not getting the help from social services that they require and they also said that would feel a lot less isolated if they were given the support they need and what I believe to rightfully deserve.

It’s crazy, it really is.
The future scares me, it really does. Its something I try to not think about too often because it worries me, really worries me.
What does it hold for us, how well will we cope, how we can get the best for Dylan possible and all while keeping the balance of family life right too… it’s a lot to think of and far too much to dwell on.

-WeeOhana-

7

Hello 2018.

Hello 2018

Hello 2018, nice to meet you.
I know your going to be a tough one, it isn’t going to be an easy ride and I can’t prepare myself or my family for what is to come.

One of my goals for 2018 is to try and put myself first more often, be it when buying the shopping getting the meal I really fancy even though it might not be Ads favourite or going out for a long walk by myself once he gets home from work if its been a tough day, or even grabbing a bite to eat with my sister.
I’m hoping that this will then help to keep my mind set straight as much as possible and that when it does start to fault I will know sooner and be able to reach out for the support I need before it gets really bad again.

Another thing I want to work on which is something I have always been useless at and I have asked Ad to work on too is talking about emotions.
We have so much going on and I think it is really important that we try to be as open as possible with each other about everything. How we feel, what’s upset us, when we need a break, if we just want to cry, no matter what it is we need to be open with each other.
Otherwise we wont make it through this.

To keep me smiling and to help find something positive in everyday even when its been the roughest day I started a little hashtag #inspirehappiness365.
I plan to do one post a day on Instagram for 365 days of the thing that made me happy and smile. This will help me to look for the positive in the rough and also remind me to post on Instagram at least once a day.
Your more than welcome to join in if you would like!

I hope you have a fantastic 2018 and you have set attainable goals rather than pie in the sky ones!

-WeeOhana

0

Hopefully Planning can help.

Recently my head seems completely filled with everything that is going on.
If I’m not going to an appointment that week, I’m making one and having to check that it wont clash with the several other appointments that area already made. Then with everything that is going on my head never seems to stop thinking, worrying, planning and mainly just trying to get my head around it all to understand it.

To try to help with organising appointments so that they aren’t all constantly buzzing around in my head and to enable me to make them when I am out and not having to call once I’m home to either change or cancel if he already has one I purchased a lovely little handbag size monthly planner. What makes it even more wonderful is that it has some lovely little motivational quotes throughout it too. It is really beautiful and even better than I expected when I ordered it.

What I really like is that it has a month on each page, so it is quick and easy to see when I am free for appointments and when I am not.
I am rather looking forward to filling it in and even more excited now because I was invited along to the opening of a lovely little stationery type shop called Smiggle.
They sell a variety of things, from scented pencils, gel pens, backpacks, lunch boxes, games, jewellery etc! Everything was so bright and colourful in the shop, and I really loved that the items aimed at boys were brightly coloured.

The members of staff in the shop were so wonderful with Amellia as she was very excited by it all. One of the ladies took Amellia around and showed her some of their fun and exciting pens that they do and helped her choose a few items that she would like. She decided on a pen with a unicorn on it that fires, a boxing owl pen and a set of highlighters.

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I now have a lovely little selection of scented gel pens, highlights and a few other bits and pieces to make my pocket planner even easier to see who is doing what.
If you are near a Smiggle you should really pop along and have a nosy around, I bet you wont be able to resist all of the cuteness!

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-WeeOhana

*-* *disclaimer* I was given some of these stationary items from Smiggle free of charge to include them in a post *-*

5

Time goes too fast!

Next week my baby girl is turning six and I just can’t believe it!
In some ways time seems to have just gone so fast, but in others it feels like moments were so long ago!
She has grown into a crazy, hyper, loving, button pushing, understanding and majorly beautiful little girl!
She stole my heart the moment she was born and we got through a really tough time together at the very start of her little wonderful life on this earth. She came when I needed her the most and is now such a beautiful little ray of sunshine!
If I ever feel down, she will do anything to make me laugh, if I’m feeling like a giant child and I just want to mess around then she is always very pleased to join in and if I ever need a hand (majority of the time) she will help!

She got her main birthday present early, it was a ‘big’ girls bike!
We decided to give it to her early so that she could use it for a while during the summer time before she headed back to school. She really enjoys going out on her bike, but I hope that with not using it as much over the winter that she wont forget how to do It and lose her confidence, I will have to try and get Ad to take her out often.
Obviously we have got her some things for on her birthday but we have decided to not go quite so mad as we did for her last birthday and Christmas.. it was rather a lot!

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I can’t thank Ad enough for all the support, love, encouragement, care, compassion, fun, and many other things that he shows Amellia. They completely adore each other and she really does idealize him!

Ad; Thank you so much for everything you do for us, you treat her wonderfully and we all love you too the moon and back! Always & Forever.
Amellia; You are an incredible little girl, I am so proud of you for everything you do! Just please.. Stop growing up so fast!!!

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