4

Time goes too fast!

Next week my baby girl is turning six and I just can’t believe it!
In some ways time seems to have just gone so fast, but in others it feels like moments were so long ago!
She has grown into a crazy, hyper, loving, button pushing, understanding and majorly beautiful little girl!
She stole my heart the moment she was born and we got through a really tough time together at the very start of her little wonderful life on this earth. She came when I needed her the most and is now such a beautiful little ray of sunshine!
If I ever feel down, she will do anything to make me laugh, if I’m feeling like a giant child and I just want to mess around then she is always very pleased to join in and if I ever need a hand (majority of the time) she will help!

She got her main birthday present early, it was a ‘big’ girls bike!
We decided to give it to her early so that she could use it for a while during the summer time before she headed back to school. She really enjoys going out on her bike, but I hope that with not using it as much over the winter that she wont forget how to do It and lose her confidence, I will have to try and get Ad to take her out often.
Obviously we have got her some things for on her birthday but we have decided to not go quite so mad as we did for her last birthday and Christmas.. it was rather a lot!

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I can’t thank Ad enough for all the support, love, encouragement, care, compassion, fun, and many other things that he shows Amellia. They completely adore each other and she really does idealize him!

Ad; Thank you so much for everything you do for us, you treat her wonderfully and we all love you too the moon and back! Always & Forever.
Amellia; You are an incredible little girl, I am so proud of you for everything you do! Just please.. Stop growing up so fast!!!

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0

Sibling Love.

My daughter always makes me proud, and I try to ensure that she is very aware of how proud she makes me. Especially when it comes to her brother.
Yes, like many brother and sisters they fight, dislike each other at times and want the same toy as what the other is playing with.
Though having a brother like Dylan is a lot more challenging than just the usual arguments and misunderstanding that happen between siblings.
It means that Amellia has had to learn a whole new way to play, interact and socialize with him among with many other things.

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She is currently waiting for him to say her name and asks on a regular basis do we think he will ever say her name. This is always a hard questions to answer because as much as we hope he will gain speech soon we cannot guarantee or promise this.
She longs to play duplo with him, kick a football about and get up to mischief together like you would expect from having a sibling around.
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She has adapted how she plays with Dylan, and if she really wants to get his attention she knows how to do this;will wave her hand in front of his face, or show him a train close by and this generally works. He also loves being spun in his chair that she has so she will often spin him in this and it is great when you can hear them both giggling away together. Its times I treasure and they really melt my heart. You learn to really treasure these moments as they are far and few between, so when they do happen they are just magical.
Sometimes though it just makes him angry and lash out. Unfortunately but also thankfully she is getting better at dodging his aggressive swings for her when she does something he doesn’t like, or want to do. She is starting to learn the signs for when he wants to play or for when he just needs left alone.

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Amellia really keeps me thinking positivly about all that is going on in our little family, yes sometimes things are really tough for her and we ensure that she gets time out to be a typical 5-year-old without having to worry about leaving if Dylan dislikes a place or whatever we have chosen to do that day but her understanding when Dylan gets overwhelmed by a place is absolutely magnificent. She will often say to me if it just me taking them to the park that she is ok with leaving if Dylan doesn’t like it when we get there.
I also really admire how proud of her brother she is, when we are out and she is talking to someone she will openly say about her brother having autism and people are generally shocked by how open she is and never quite know what to reply. She will then go on to tell them about Autism and how it affects her brother and that sometimes he will get mad, but he isn’t doing it to be mean, he just can’t understand you and doesn’t know how to tell you what he thinks.

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Yesterday she came home from school and nearly had me in tears.
She came up to me and told me that we don’t need to send Dylan to the school that we have seen for him because she is going to open a school just for children with autism. She is going to make it with a soft play room, sensory room, colouring and a room especially for Dylan with Thomas the Tank engine all over it.
Then she went on to tell us about how she will let them play most of the day so that they don’t get upset and she will try to teach them but if they get upset she will have an Ipad there for them to use to help to calm him down and they can then play letter games on it to help them to learn.

My heart melted.. My little girl amazes me everyday. She is so understanding, caring, loving and wants to just help in every way that she can.
When we explained to her that he will be a little to old when she has done she said that’s ok then mummy, because I can help other children like Dylan and he can come in and help me ❤img_4646

Dylan is so lucky to have a sister like her, and she helps him so much and wouldn’t ever be without him.
She tells me often that when I get older and I can’t look after Dylan anymore she will live with him so that she can keep him safe and make sure that he has the best life he can. She doesn’t want to get married or have any children so that she can always be there for Dylan when he needs her.

Simply put; I think he is the luckiest little brother and she is the most understanding big sister around.

-WeeOhana

9

Learning to ride a bike!

We have been trying to teach Amellia how to ride her bike for the past few days, at the start I thought it was never going to happen! She couldn’t stop nervous laughing, singing and just messing about!
img_8790-1We started off with the being really nice, patience, singing along and joining in with all her jokes. Keeping on the flat and slow pushing to start with.. until we realised this was getting us no where apart from a little girl who just couldn’t stop laughing!
We told her that she had to take it seriously if she wanted to learn and we were a little tougher, though reassuring, giving her all the compliments and the encouragement. This seemed to be the best way forward! By the end of the first day she had so nearly got it, but she had got tired and was asking if she could go and play in the park so we decided to call it a day and try again tomorrow!

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The next day she more or less had it! But it was very apparent that her bike was pretty tiny for her and was making it more difficult to pedal! We told her if she would like, we could get her a bigger bike as an early birthday! She was ecstatic and just couldn’t wait to get the cycling down really well so she could head out to find a new bike!

img_8899This is the bike she picked and as you can tell by her rather excited face that she really loved it! We went round all of the local shops and typically she had her heart set on this one from the very first shop. It is based on one of her much-loved Disney movie The Descendants, we even managed to get her a matching helmet and bell, she couldn’t wait to pick it up the next day! Lucky for her though, the lovely man called me when she had just gone to bed to tell me he had already built it and if I wanted to pop over and get it I could, she was completely over joyed when I produced it the next day without having to go to the shop to pick it up!

img_8904She couldn’t wait to take it out for a spin, and we couldn’t wait to see what difference it made being on a bike that wasn’t for tiny little ones!
Off she went, with daddy by her side and the bike that was the right size made all the difference!!

 

Super proud mummy & daddy right now! =]
Look at her go!

So my advice for teaching your little ones how to ride the bike;
-Be Firm
-Encouraging
– Let go when they think you are still holding on!!

Hope you are enjoying your summer, I’m loving having both my kiddywinks together! =]

-WeeOhana

JakiJellz
0

Pepper Plants

A few weeks ago Amellia and I decided to try our hand at growing our own little vegetables. We went out to the garden centre with my mum and picked up an adorable little Elho starter kit, picked out some seeds and headed home to get planting!
The next morning when Dylan was enjoying his breakfast we got stuck in! She loved filling it up with the soil using her little spade and then getting her hands messy spreading it out!

img_3832That little face gets me every time ❤

She then had a lot of fun planting the seeds! She dotted them about randomly and thought it was great pushing them into the soil! She couldn’t quite understand why they hadn’t grown overnight though and wasn’t too pleased about having to wait!
Once they had started to grow you would have thought it was Christmas! She was so excited and couldn’t get over how cute they all were! She also had to give them a little reassuring tap when they broke through the soil!

img_4130-1I did try to tell her that it wasn’t really the greatest idea.. but she wanted to welcome them to the family and reassured me she was doing it gently! It took a while for more to appear and I was convinced that we were only going to get 5-7 plants.. We ended up with a whole army of them!
img_4706We have now planted them into separate little pots.. well two in each and so far so good! We have given four to my mum so that she can look after them and have her own peppers when they get big enough and next time we see my sister I am going to take some down to her too! But we will still have an awful lot of pepper plants if they all make it! Thankfully my hubby and I really like peppers!
If you live close by and fancy one let me know as we have lots to spare!

img_5061This is less than half of what we have!

Do you grow own veg at home?

WeeOhana xx

18

The Start of a Long Journey

I’m not really sure what to write, or how to phrase what I write really, I just know that I need to write it somewhere as a place to get it out and as a sort of journal for what all is about to begin. Currently we are just starting a long journey with our handsome son to see what is going on with him. Our first step is Monday when he is getting seen by the audiologist.

I’ve had my worries about him for a while, but it took me  until a few months to convince myself that I wasn’t just being silly and there was something going on. I then decided to book a doctors appointment and went armed with a list of my worries and concerns about what was going on with him. I felt like a crazy mum going in with a list, but the doctor there knows me well, was very welcoming and told me he was glad I had a list so that I didn’t forget anything. So after him checking over my little monkeys ears/throat etc we discussed what I was worried about, he decided that we needed to get the health visitor over to see him asap and to get the ball rolling to sort things out with him. One thing he said that really got to me was that “he will either progress from here, or start to go backwards.”

After speaking to my doctor I was hoping to have a weight lifted off my shoulders and him telling me that I was just being silly, not to rush him and so forth but as you can tell, thats not how it went. I came home and got on the phone to the health visitor to get her to come and sort us out. I had to wait a week until she was available to come over, and I’m sure a lot of you reading this are parents and you know how long a week feels when you are in panic and upset about your child.. little did I know the waiting time of a week was the shortest I would endure in this process.

When she arrived she asked me what my worries and concerns were and we got to have a good chat as he was having a little nap. My worries were.. I suppose still are!

  • He doesn’t respond to his name, no matter how loud you shout it. Though hears things like doors creaking etc. At the start I was worried he was deaf, until I realized it was more a selective hearing thing. (this is getting checked on Monday though as they have to clear his hearing before checking everything else)
  • He is 21 months and doesn’t say a word, he babbles a bit, but no words or sounds that mean anything to him. He used to say dada/dog etc and knew what they meant.. now they have disappeared.
  • He tiptoe walks, a lot. Like right up nearly as high as he can get.
  • Extremely fussy with the foods he eats.. Doesn’t really like lumps or bumps in his food.
  • Doesn’t brings toys over to show me/his dad or his sister
  • Isn’t keen on his sister sitting beside him, when she does he will try to bite her/pull her hair.
  • Very little eye contact, or response to emotions from others.
  • Head banging against a wall/floor (very upsetting to experience =()

As I told her these she asked me had I been on google and were these all big worries or just little things.. when I told her that I used to work with children with additional needs she started to listen a little more, and then when he woke up and demonstrated to her several of these things she then said that I was right to have a list written. She then plowed on to serious mode.. She told me that she hoped she would come here and see him and tell me that she would come back and see him in a few more months and that he would grow out of the things he did. Unfortunately she told me this wasn’t the case and she wanted to write down reports etc and get them sent off that night to get him on the list to be seen by the child developmental team as soon as possible. . This was at the start of July.

I have had a lot of time to take it all in, think things over and over again, worry, get upset, get annoyed and most emotions possible really. This is a real tough thing to be going through and to be left in the dark with when the ball will start rolling. I have his audio on Monday so at least that is something but I am yet to have an appointment from the child developmental team. I am going to ask them when I am in on Monday if they have a clue about time frame.. I think the not knowing when it is all going to start is the hardest.. Especially when I know that when the ball has started rolling it wont be straight forward and that it will be a long time after many appointments to know what is going on.

As his mum, I just want to make it all ok everything be fine and one day for him to wake and to have came on leaps and bounds. Be talking and everything.. but as the days and weeks go past, I know that wont be anytime soon. It hurts a lot, but I have to keep my brave face on, keep smiling and positive for my family.

One thing I have found through all this though is that you constantly seem to be on the look out for things that are different/worrying/wrong etc.. So I have tried to concentrate on the positive and enjoy what makes him, him. The way when he laughs, its from deep within him, he has the most wonderful and infections laugh and when you have discovered what makes him laugh you can do it 1000 times over and he will find it just as funny as he did the first time! How when you hand him something new he will inspect it in great detail, turning it over and over again in his hands looking at all the tiny little details on it. That he empties out the whole box of hot wheels to find the one with the red roof and then will grab any other one to have one in each hand.. then will go to the table and play with them for ages without anything distracting.. unless his sister goes near him! 😛  That he will pick the tiny bits off the carpet and place them in my hand and will do this until he thinks they have all gone! When he climbs up beside his sister and for the brief moment will sit beside her and how excited and happy she gets by this, and how at the park he will find a bridge, and go back and forth across this bridge the whole time we spend there chuckling away to himself. He does a whole load more that makes me so proud and privileged to have him as my wonderful son. I love him, and I always will, no matter what the outcome is.

WeeOhana. xx

 

2

Gruffalo Trail

The other day we set out on an adventure, to find The Gruffalo!

First of all we had to start with a little drive in the car.. and the Sat Nav trying to make us actually drive through the forest.. but we figured out where we were really meant to go and got parked and ready to head out! We had went on a week day, and it wasn’t overly lovely weather so it was a bonus that the place was quieter than we had expected! We had also taken a picnic with us.. but with little grass space and it being a bit chilly we ended up eating in the car! There was picnic benches for if it is a bit of a nicer day whenever you get a chance to visit!

The Gruffalo Trail is by the Colin Glen Visitor Centre, which has toilets and a cafe in also which is very handy when traveling with little ones! I would made a suggestion of reading the book the night before too.. we decided in the morning to go so we didn’t really think of that! We had forgotten what order all the creatures come in though we still enjoyed, but with a refresher for little minds and yours it may make it even more enjoyable!

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This is the entrance to the very exciting Gruffalo Trail, when we first saw this we thought they may have snippets of the book throughout so thought it would help refresh our minds, but this is all the words there is!

As you are walking if you keep a look out in the trees there are little picture signs that show you and your little ones which animal is coming up next and what to keep there eyes peeled for! It also adds extra things too look for, so keeps the excitement for the whole walk! We found that the walk took approximately thirty minutes, that includes stopping at all the figures for pictures, picking up sticks, looking in the river and all the things little ones enjoy to do while out on an adventure! You can carry on walking but we decided to turn around once we had met The Gruffalo, as it was a little chilly and she was already saying her little legs were getting tired. She was also highly disappointed that we didn’t meet the real Gruffalo in the deep dark wood.. but when we explained that he had been and that this was where we had stood etc she then loved it again!

The first stop was the little mouse
dsc00498.jpgI say little loosely as the figures were all of fantastic size, quality and detail! They looked exactly as they are pictured in the book and in great condition seeing as there will have been lots of children clambering over them all! My little girl just loved the fact you could touch, poke, climb on and do whatever you really wanted to do with them!

Anyway.. I wont show you pictures of all the animals you met along the way, its good to have some sort of surprise, right? 😛

I would recommended the Gruffalo Trail, but I’m not sure it would be a whole day trip even if you did keep walking, as after that it is just forest and I’m not sure how long you can walk or how far little ones who like the Gruffalo could walk! Even so, it is a great little trip for half a day or the such with the walk and then some food! It is close enough to Belfast, so it depends were you come from for how long the drive is really! I can imagine this would be very busy on sunny days, especially weekends or when the children are off for Easter/summer!

Here are my favorite two with The Gruffalo!

dsc00526.jpgYep, Little man slept the whole time while the other ran about thoroughly enjoying the fresh air!

If you are ever near Belfast and have a few hours to kill, now you have a new place to explore!

WeeOhana

 

 

0

Willoughby Book Club

Ever been stuck wondering what to get someone for Christmas/Birthday?
What about a gift that just keeps on giving?

My sister got my daughter a fantastic present for Christmas! A gift that just keep giving and to make it even more exciting it arrives in the post every month! What little one doesn’t love receiving post addressed to them that they can thoroughly enjoy!
She signed her up to a The Willoughby Book Club!

At the start of every month a lovely shinny new book comes in the post in a cardboard sleeve with a big I ❤ WBC sticker on it! As soon as she spots that sticker she is so excited to open it and see what book she has got. Then it is wrapped in lovely tissue paper, which is very quickly ripped open, to reveal a beautiful book! Every book that she has received so far has been absolutely beautiful, wonderful stories, beautiful pictures and different ones to what you would find in your everyday shops! She then gets stuck on that book until the new one arrives in the post!

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They have subscriptions for every age on there website from 0-100 really! There are lots of options on there website! You should really head over and have a nosey- http://www.thewilloughbybookclub.co.uk/ 

When you have subscribed to receive one of there monthly books you then put in some information about yourself or the person who will be receiving the books and they then tailor the subscription to be perfect for the receiver!  They are also teamed up with Book Aid International, this is a charity that helps people in the Sub-Saharan Africa have access to books and supporting literacy. So every time someone takes up a subscription Willoughby Book Club Donates a book to them! Hoe super is that.. getting a lovely present for yourself or a loved one and also helping people who are less fortunate than yourself!

I highly recommended this for a gift for someone, I have been amazed by each and every book that my daughter has received! Beautiful, magical and a very enjoyable story time before bed all wrapped and presented so lovely.

WeeOhana xx