3

DIS – Week 5

Unfortunately after the week break for Halloween Dylan wasn’t as cooperative at his 5th DIS as he had grown to be in the previous ones.
He went in great, but he found it very difficult moving from the sand table which is what he always does first. After a little fussing and lashing out he then moved on to the next task which was puzzles and a shape shorter which is something that he really enjoys doing. He completed them all and after a gentle reminder to put them in the done box he did this successfully after every one he completed. He enjoyed doing the tasks at this table so much he tried to get the ones out from underneath for the next child. It was then time for the water tray.

IMG_0564.jpgAfter a very enjoyable time playing in the water tray it was then time to move onto the next table. This time thankfully he moved over great and took the object with him to match with the other object,he sat down nicely as he knew that he got to play in the lentils here and he really enjoys that. First of all she got him to do some letter matching and was very surprised that he could do this, though I had told her from the first one that numbers and letters were his up most favourite thing and he really enjoys. He then got very distressed when having to move on from matching letters but we managed to get him settled again by playing with a balloon and he then completed all the tasks at this table.

IMG_0687.jpgIt was then over to the carpet to play with the trains before heading home. I then chatted with the lovely lady while he was playing for a short while, we both agreed that the weeks have gone so fast and she said that she agrees with everything that they have said during the CDC clinics. She said we will discuss things further next week and hopes to have her report written up by then which would be great.

Lets hope the last ones goes smoothly and the speech therapist gets a chance to pop along and see how much he has improved with once a week so that she will then hopefully see him more often.

What is DIS?
DIS- Week 1
DIS- Week 2
DIS- Week 3
DIS- Week 4
– WeeOhana

0

Hopefully Planning can help.

Recently my head seems completely filled with everything that is going on.
If I’m not going to an appointment that week, I’m making one and having to check that it wont clash with the several other appointments that area already made. Then with everything that is going on my head never seems to stop thinking, worrying, planning and mainly just trying to get my head around it all to understand it.

To try to help with organising appointments so that they aren’t all constantly buzzing around in my head and to enable me to make them when I am out and not having to call once I’m home to either change or cancel if he already has one I purchased a lovely little handbag size monthly planner. What makes it even more wonderful is that it has some lovely little motivational quotes throughout it too. It is really beautiful and even better than I expected when I ordered it.

What I really like is that it has a month on each page, so it is quick and easy to see when I am free for appointments and when I am not.
I am rather looking forward to filling it in and even more excited now because I was invited along to the opening of a lovely little stationery type shop called Smiggle.
They sell a variety of things, from scented pencils, gel pens, backpacks, lunch boxes, games, jewellery etc! Everything was so bright and colourful in the shop, and I really loved that the items aimed at boys were brightly coloured.

The members of staff in the shop were so wonderful with Amellia as she was very excited by it all. One of the ladies took Amellia around and showed her some of their fun and exciting pens that they do and helped her choose a few items that she would like. She decided on a pen with a unicorn on it that fires, a boxing owl pen and a set of highlighters.

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I now have a lovely little selection of scented gel pens, highlights and a few other bits and pieces to make my pocket planner even easier to see who is doing what.
If you are near a Smiggle you should really pop along and have a nosy around, I bet you wont be able to resist all of the cuteness!

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-WeeOhana

*-* *disclaimer* I was given some of these stationary items from Smiggle free of charge to include them in a post *-*

3

Lentil Sensory Play!

Dylan’s regression in food has made me want to do a lot of sensory play with him. We do sensory play rather regularly but I want to try to do a little more and hopefully this will aid in helping him get back to at least eating the few things he used too.

Sensory play in our house always has to be with dry items, I’m hoping that if I find something dry that he really enjoys playing with I can then start to cook a few bits of it at a time and he wont notice the change. Then he will accept the change naturally without even noticing it!
Recently we did some sensory play with red split lentils. I chose these because the orange went with it being Halloween and they were bright and colourful. I added in a few objects with simple names so that I could name them to Dylan, I am going to use the same objects in all the sensory play that we do to hopefully help him learn these words.
Repetition is key!

He really enjoyed burying the objects and finding them again, his sister really enjoyed doing his sensory play with him and it really helped them to connect a little and have fun together.

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She was burying her hand and he was finding it then she was helping him to bury his hand and finding it again. I love seeing them play together, it’s a rare occurrence but a simply magical once when it happens.

-WeeOhana

17

Regression where we can’t afford one!

I thought we were getting somewhere with Dylan and his eating.
He had added pancakes and pork mince to his very short list of foods that he would actually eat happily and enjoy, though over the past few weeks slowly but surely foods what he will eat are being eliminated.

Rice Krispies are thankfully still being eaten for his breakfast unfortunately he eats his breakfast slower than a snail, but as long as he is eating something I am more than happy.
For lunch he used to enjoy some lightly buttered toast, but as of recent he just won’t eat it. I can leave it in front of him all day and he just wouldn’t touch it. I try to encourage him by taking a bite myself and making all the positives noises, I show it to him, everything… but he just won’t eat it anymore. Thankfully he will eat just plain dry bread sometimes, so his lunch has now been changed to dry bread when he will eat it.
Dinner, now this is where we are really struggling. He used to eat plain mince every dinner time and would really enjoy it, we then got able to add in pork mince and the occasional chips too! Now though… we are really struggling to get him to eat anything at all for his dinner. He has stopped eating his mince and will only eat a few chips.
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For snacks there really isn’t a great deal either. He really enjoys spicy Doritos… odd choice yes but he does really enjoy them, quavers, mini caramel squares, fruit flakes… which we have been told not to give him anymore and to cut out of his diet as they are high in sugar, I thought I was being good giving him them as they are fruit but nope. Though I will not be cutting these out of his diet or making any effort to do so, I feel that at the moment trying to cut anything out of his diet would be a really stupid thing to do seeing as it is so minimal already.  The squishy fruit pouches which we have also been told to cut out because of sugar but that also won’t be happening and then his most favourite snack and anyone that knows Dylan is sure to have seen him with one of these tightly held in his hand is a digestive biscuit! He would live off these if he could, we make sure that everywhere we go we have some with us as they really do help him settle sometimes, magic buiscuits!

We are really struggling with food at the moment and many people don’t understand how distressing this is. We often get told that well he isn’t wasting away so he is doing ok, and several things along those lines… I mean obviously he isn’t wasting away and if it ever gets to that stage we would have to seriously consider our options and do what was best for him and it is something that has crossed my mind recently with how quickly he is phasing out foods that he seemed to really enjoy.

To drink he really loves pure orange juice and thankfully doesn’t notice the supplement that we now put in it to make sure that he is getting all the vitamins that he needs, though again the dietician told us to try and water this down and phase it out because it is again high in sugar and we thought we were doing great with him drinking that and getting some fruit… doh!
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We have an appointment with the dietician next week, and what I really want to gain from this is a repeat prescription for his supplements as I know that she won’t have any ideas for encouraging him to eat because last time she told us that it was up to the occupational therapist to offer advice as it is a sensory issue with Dylan. I am then hoping that I can then request an appointment just with the Occupational therapist as currently we only see her with the speech therapist so if we can see her more often hopefully we can get on the road to Dylan enjoying food as much as his sister does!

Do you have any tips, ideas or pointers?! Help!
-WeeOhana

6

Optometrist

It was Dylan’s first appointment at the optometrist yesterday, and yes when the letter arrived I looked at it a little confused and had to google what an optometrist was. Basically, put it is someone who examines your eyes to make sure they are healthy and well.
It is a hard question to answer whenever we are asked if we think there are any problems with Dylan’s vision. There are several things that Dylan does that makes us concerned about his vision, but it is very difficult to tell if this is due to an eyesight problem or if it is sensory based.
For example, when he is using his iPad sometimes he will hold it up really close, this may be because he is finding it hard to see, or simply because he really enjoys the colours that close and it helps him to zone out. When we are out he will also watch everything that is happening around him on his iPad camera rather than just looking about, this may be because if he has poor eyesight his eyes strain to concentrate on things and this helps, but it may also be that he finds it a little less overwhelming when out when he can focus on the screen rather than the whole thing in front of him. (Does that make sense?)
Also Astigmatism is common in my family, this is basically where the cornea or lens of your eyes isn’t the perfect curved shape it is meant to be, this will then cause your vision to be slightly blurred or distorted. So, we want to check to see if he has this too.
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I went in expecting it to turn out to be a horrible appointment considering that I had taken Amellia to get her eyes checked recently and was thinking he would have to get eye drops and someone up very close and personal. (his least favourite thing)
Thankfully though this was just the first part of the test, which is to ensure that his eyes are moving together nicely, to see that he can track something with his vision while it is getting moved around and a few other things like that.
He was able to follow a variety of objects around and the lovely optometrist was pleased with how he did in all in her test, but wants him to go on to get a further examination to find out if the worries are all sensory based or if there is some eye problems that are also causing him to do the things that raised this concern.

This appointment was a really successful one, the lady told us that she had read his information before we got there so she knew what to expect and wouldn’t push boundaries. She was extremely understanding and just wonderful, she ensured that she didn’t annoy Dylan and when she got too close to his pram he quickly alerted her by shouting at her and trying to push her away and she immediately did this when he showed any tiny sign of being distressed. She said that there is no point getting him worked up as this will then just mean that she won’t be able to get any part of the test done and will just put him in a bad mood for the rest of the day so wouldn’t be beneficial for anyone.

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The next appointment which unfortunately has an approx. three month waiting list has me worrying already though. This is with a different optometrist but she has told me she will pass on all her notes and with how she dealt with him today so that hopefully she will be well informed and just as understanding too!
What makes me worry about the next appointment is that he has to have eye drops in so that they can inspect his eye the best they can. She offered for us to bring them home so that we could put them in before the appointment or told us that we could get them done at the hospital just before the appointment. I went for the second option… I do not fancy having to battle him to get eye drops in, especially if Adrian is working. Though I think even if Adrian was off it will still be a pretty hard task to get eye drops in.
Fingers crossed Adrian can get the day off work and then it means there will be three of us to hopefully help it go as smoothly as possible.

I will let you know how it goes!

-WeeOhana