We see the dietician regularly and have done for about a year or so now. Unfortunately it hasn’t proved to be very helpful and now we are at crisis point and that’s when she starts to panic and trying to desperately help. Reaching out to the other professionals she knows for advice.
When we first went to see her Dylan was on the 75th centile. Even though he didn’t have a very varied diet he had one thing from most food groups and what he was eating he was eating in large quantities. At this stage I asked for advice on how to encourage him to try new things and was told to just keep offering it to him, do lots of sensory play but to not be too concerned as he was getting most of his food groups and she provided us with a powder to put in his drinks to provide him with his vitamins and minerals.
Next time we went to see her his diet was starting to be a bit more restrictive, he hadn’t gained weight but also hadn’t lost any so she said not too worry to much. She gave the same advice as previous and couldn’t give any other advice on how to encourage him to eat or offer any other support.
This time he had dropped to the 50th centile and she wasn’t happy and said that if he was to drop more it would be serious. I voiced my concerns about him possibly having an allergy and this may be stopping him from wanting to eat. If he relates food to pain and only has these select few as safe and knows they don’t hurt then maybe that was why he was so selective. She said that may be true but at this stage didn’t do any tests etc. Despite saying that she still couldn’t offer us any help, workshops or get us referred to anything else to try and help him.
Now he has dropped to the 25th centile and is malnourished. His height is dropping too and this is a huge concern as is now showing that his restrictive diet is effecting his bones and everything too. His diet has got worse and worse, he now eats around 5 things. She has prescribed these smoothie shake things to try and aid him to put on weight, but to put on weight from these he needs to be drinking 6 of them a day. We are finding it rather a struggle to just get one in, but I am so glad he will actually drink it if we trick him. If he doesn’t start to put on weight quickly he will need to go down the medical route, which is obviously a very scary prospect for anyone.
She is now thinking we need to start looking at how his gut is, his throat and all that linked to his digestive system. Also that we need to try these shakes for a few more days and if they still keep having an effect like they are at the moment that they think he may be lactose intolerant.
It is an extremely stressful time for us. I am like a wound up cog, constantly on edge. Having to calorie count everything he eats each day, worrying that he wont put on weight and what if. .
Hopefully next time I can report back that he is putting on weight. Fingers Crossed!
I thought we were getting somewhere with Dylan and his eating.
He had added pancakes and pork mince to his very short list of foods that he would actually eat happily and enjoy, though over the past few weeks slowly but surely foods what he will eat are being eliminated.
Rice Krispies are thankfully still being eaten for his breakfast unfortunately he eats his breakfast slower than a snail, but as long as he is eating something I am more than happy.
For lunch he used to enjoy some lightly buttered toast, but as of recent he just won’t eat it. I can leave it in front of him all day and he just wouldn’t touch it. I try to encourage him by taking a bite myself and making all the positives noises, I show it to him, everything… but he just won’t eat it anymore. Thankfully he will eat just plain dry bread sometimes, so his lunch has now been changed to dry bread when he will eat it.
Dinner, now this is where we are really struggling. He used to eat plain mince every dinner time and would really enjoy it, we then got able to add in pork mince and the occasional chips too! Now though… we are really struggling to get him to eat anything at all for his dinner. He has stopped eating his mince and will only eat a few chips.
For snacks there really isn’t a great deal either. He really enjoys spicy Doritos… odd choice yes but he does really enjoy them, quavers, mini caramel squares, fruit flakes… which we have been told not to give him anymore and to cut out of his diet as they are high in sugar, I thought I was being good giving him them as they are fruit but nope. Though I will not be cutting these out of his diet or making any effort to do so, I feel that at the moment trying to cut anything out of his diet would be a really stupid thing to do seeing as it is so minimal already. The squishy fruit pouches which we have also been told to cut out because of sugar but that also won’t be happening and then his most favourite snack and anyone that knows Dylan is sure to have seen him with one of these tightly held in his hand is a digestive biscuit! He would live off these if he could, we make sure that everywhere we go we have some with us as they really do help him settle sometimes, magic buiscuits!
We are really struggling with food at the moment and many people don’t understand how distressing this is. We often get told that well he isn’t wasting away so he is doing ok, and several things along those lines… I mean obviously he isn’t wasting away and if it ever gets to that stage we would have to seriously consider our options and do what was best for him and it is something that has crossed my mind recently with how quickly he is phasing out foods that he seemed to really enjoy.
To drink he really loves pure orange juice and thankfully doesn’t notice the supplement that we now put in it to make sure that he is getting all the vitamins that he needs, though again the dietician told us to try and water this down and phase it out because it is again high in sugar and we thought we were doing great with him drinking that and getting some fruit… doh!
We have an appointment with the dietician next week, and what I really want to gain from this is a repeat prescription for his supplements as I know that she won’t have any ideas for encouraging him to eat because last time she told us that it was up to the occupational therapist to offer advice as it is a sensory issue with Dylan. I am then hoping that I can then request an appointment just with the Occupational therapist as currently we only see her with the speech therapist so if we can see her more often hopefully we can get on the road to Dylan enjoying food as much as his sister does!
Do you have any tips, ideas or pointers?! Help!
Last week we had our first appointment with the dietician. I was very excited for this appointment and couldn’t wait for some new ideas on how to encourage Dylan to eat or at least even try more things!
At the moment his diet is extremely limited and we have tried everything that we can think of possible ways to encourage him to try other things also to drink things such as milk to ensure he is getting all the goodness he needs to grow up strong and healthy!
We haven’t had much luck at all, and he is now starting to go off things that he used to eat.
We had to weigh out and write down what he had eaten in the past three days and when it was all wrote down it hit me with how little he really did eat. Every day breakfast, lunch and dinner is exactly the same with a variation on snacks and what he has after.. but by variation I mean three different things.
We are lucky because he does drink pure orange juice and apple juice, though he wont drink anything apart from them.
Going in with high hopes and expectations for ideas of how to encourage him to eat more, drink more and live a little healthier and coming out with no new ideas at all on anything was rather disappointing.
She told us that his diet was extremely limited and that we had to try to encourage him to eat other things. (What did she think we had been doing!?) When I asked her how we could encourage him to eat new foods she just said to keep trying what we were already trying. This was without even asking what we were trying.
Something that she did do though was prescribe him a multi-vitamin powder type idea that has all the essential vitamins and goodness in! Though she did say in her next breath that she doesn’t think he will take it, so yeah. I have my fingers crossed that he will, but her lack of confidence wasn’t the greatest.
We learnt something that we weren’t aware of too, bread has calcium in it! Well, the Hovis best of both contains calcium! If your little one isn’t calcium this is a great way to up the intake in their diet! =]
Fingers crossed we can come up with some new ideas ourselves to try to encourage him to widen his diet a bit!
If you have any tips please let me know!! =D
Dylan has his first appointment with the dietician coming up soon!
I’m not entirely sure what to expect but if they can give us some advice on how to encourage him to move off this diet of toast, mince and rice crispies would be great!
I don’t have any concern about his weight really as he is pretty sturdiy and healthy looking boy, but eating a diet that is very minimal isn’t going to be the greatest for his inside.
We have to remember to do his food diary for three days before we go, but I’m pretty sure I could fill it in today and it would be right for then as we have tried everything we can think of to get him to eat other things!
To try and encourage him to have a more varied diet we have done from lots of messy play (which he really dislikes) too trying to sneak tiny bits in.. he spots it a mile off! At our first appointment with the CDC team we were told to do lots of messy play as your mouth is very closely linked to your hands with the feelings that they both feel.
We have persisted with the messy play, but he is still on dry pasta, sand and painting has recently been accepted but unfortunately that is about as far as he is willing to go at the moment. If we try him with things like shaving foam or anything even slightly goopy/sticky he will just leave the room and not come back in until it has been cleared away.
It’s hard work, but at least he eats something and isn’t wasting away.
Fortunately what he does like to eat is very healthy too.. though I’m not sure how long you can eat mince meat for dinner before it gets bad for you as I’m sure all that iron isn’t the greatest!
Have you any hints or tips to try and encourage him to eat a more varied diet?