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DIS – Week 6 – Last 1

I went along with a little sadness to Dylan’s final DIS appointment, the past six weeks seem to have flown by and with this being the last one it brought along many feelings.

I was feeling pretty annoyed that they now don’t offer two sets of this and only do the one, I wish they would still do two because Dylan really showed lots of progress while attending this and I think if it was for a longer course I would then also see the benefits, progress and advancements outside of the DIS room too.
I was also upset because Dylan had really enjoyed this and had really started to enjoy going into the children’s centre and I know next time we go in he will lose the plot.
Full of happiness and being proud of Dylan too because he has coped so well, grown to love going and had came so far with her.

The speech therapist came along too see him at the last one as she is the one who had referred us on to the DIS but had told us not too expect too much. After the second one I was thinking that she was right and he wouldn’t get too far along the course before we deemed it a waste of time. She came in about 5 minutes after we had got started and she said she just couldn’t believe the difference and that it was like she was with a completely different child in the room. Because she has seen that routine is really key for Dylan she is going to try and get a regular speech and language slot for him which would be fantastic as I think this would really help him.

DIS was great and I would advise you if you have been offered it to give it a shot no matter how you expect it to go. We really didn’t think Dylan was going to be ready for it at all, but he showed us that routine really is key to everything he does.

(Sorry this post is coming to you pretty long after we went to our last DIS, but we have had lots of appointments recently and I haven’t really been coping to well either, but will update you on everything in the next few blog posts.)

What is DIS?
DIS Week 1
DIS Week 2
DIS Week 3
DIS Week 4
DIS Week 5

-WeeOhana

 

 

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DIS – Week 5

Unfortunately after the week break for Halloween Dylan wasn’t as cooperative at his 5th DIS as he had grown to be in the previous ones.
He went in great, but he found it very difficult moving from the sand table which is what he always does first. After a little fussing and lashing out he then moved on to the next task which was puzzles and a shape shorter which is something that he really enjoys doing. He completed them all and after a gentle reminder to put them in the done box he did this successfully after every one he completed. He enjoyed doing the tasks at this table so much he tried to get the ones out from underneath for the next child. It was then time for the water tray.

IMG_0564.jpgAfter a very enjoyable time playing in the water tray it was then time to move onto the next table. This time thankfully he moved over great and took the object with him to match with the other object,he sat down nicely as he knew that he got to play in the lentils here and he really enjoys that. First of all she got him to do some letter matching and was very surprised that he could do this, though I had told her from the first one that numbers and letters were his up most favourite thing and he really enjoys. He then got very distressed when having to move on from matching letters but we managed to get him settled again by playing with a balloon and he then completed all the tasks at this table.

IMG_0687.jpgIt was then over to the carpet to play with the trains before heading home. I then chatted with the lovely lady while he was playing for a short while, we both agreed that the weeks have gone so fast and she said that she agrees with everything that they have said during the CDC clinics. She said we will discuss things further next week and hopes to have her report written up by then which would be great.

Lets hope the last ones goes smoothly and the speech therapist gets a chance to pop along and see how much he has improved with once a week so that she will then hopefully see him more often.

What is DIS?
DIS- Week 1
DIS- Week 2
DIS- Week 3
DIS- Week 4
– WeeOhana

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DIS- week 4

I cannot get over how fantastically DIS is going. We went along expecting to be told that we would need to come back in a few months and to see if he was ready for it then, but we went and she said she was willing to try. I am so happy that she did.

We have now completed week 4 and have two more to go. Ad came along to this one as I was desperate for him to see how much he had progressed rather than me just telling him and he was in for a huge surprise.
Dylan moved from table to table fantastically today and even carried the item for two of the tasks from one table to the next. Which is something that he hasn’t done before.

Another thing that he did wonderfully was at the  second table she has been trying to encourage Dylan to put items into the ‘done box’ once he has completed the task and is ready to move onto the next one. She has been encouraging him to do this by aiding him in placing them into the box with a lot of hand over hand encouragement, but today he did it himself straight away after finishing his first task and then clapped himself! He then carried on doing this after every task he finished! It was absolutely amazing.

He also did a picture match, and then went on to match an object to a picture which was incredible, he loves doing the colour matching tasks and posting ones.


Dylan has come on leaps and bounds for her, so I am hoping that this will help when he is in nursery next September. With a very strict routine and 1:1 attention I can just cross my fingers he will settle into nursery ok.

We have the education board coming out soon to assess him(blog post soon about this)and get on the right path to ensure that he gets a spot in the school that will suit him best. We already have our hopes set on one .. so fingers crossed we get it as would be a huge weight lifted once we have his school sorted!

Follow the whole journey here-
What is DIS?
DIS Week 1
DIS Week 2
DIS Week 3

-WeeOhana

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DIS – Week 3

Parking today was a lot easier. One of the two parent spaces outside of the children centre was free, I mean why do they only have two near the place. If they had more hopefully all the adults just going to the doctors or an outpatients clinic wouldn’t park in the children centre car park and it would make easier parking for everyone attending the children’s centre!

As we walked in today she was already waiting for us by the door, fantastic! I  am ever so pleased with how accommodating she has been and it makes it a more positive experience for everyone. She gave Dylan the little spade that he uses in the sand and he ran right along to the room.. well past it a little and I had to redirect him but he was trying to find the right one. She opened the door and off he want straight to the sand smiling as she sang the little song and filling up the shapes with the sand.
Great, what a wonderful start, even better than last week. I was trying to contain my excitement as I knew the difficult part was coming up.
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She then showed him a piece of jigsaw to make him aware that it was time to go do some work. He went straight over from the sand to the next table without a fuss, he was very happy to change in-fact more than happy to change to the jigsaw and posting activities. I couldn’t believe my eyes and she then aided him in putting them away in the ‘all done’ box, and by his third task at this table he was then putting them in the box himself! How incredible!

Time to move to the water tray and he knew straight away that the fish meant the water tray so he ran straight over and proceeded to soak the lady and himself but all while having fun so that’s all that matters!

He wasn’t so pleased about leaving the water tray but with little encouragement and being shown what he was going to be doing at the next table made him more than happy to cooperate. At this table he did lots of colour matching which he is very good at and he really enjoys trying to say his colours. He also played with lentils at this table and thoroughly enjoys burying his hand.

Next up was the last station before it was time to go home, she showed him the train and off he went straight to the mat to play with the trains and pop up toys. It was then time to go after that.. he found leaving the most distressing today as he was having such a wonderful time!

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He was absolutely amazing at DIS today and it seems that week 2 was not just a fluke! It seems like such a strict routine really is key to helping Dylan. I also think that him being able to walk straight in without having to wait in the waiting room with others around his has been a huge help.
I can’t wait to see how the next three weeks go and then what they are going to do for him with this being such a success. I’m hoping it will mean that they will try to do some speech therapy on a lot more regular basis and some occupational therapy too.
Fingers crossed it keeps going so well and we will be offered more regular support after this!

What is DIS?
DIS week 1
DIS week 2

-WeeOhana

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DIS- Week 2

This week I had arranged with the lovely therapist that we would meet at the front desk so that we did not have to go into the waiting room with other people. This works well as he is her first appointment of the day, so she can ensure she is there promptly.
We arranged this because people being close to Dylan or looking at him causes him a lot of distress, so to have this 6-week course of DIS working as successfully as we can he needs to in a calm, happy and cooperative mood. 

One thing that I must say is that parking is crazy here, so even though Dylan’s appointment wasn’t until 10:15 I went straight over after dropping Amellia at school! It took about 35 minutes going round and round the car park to finally find a space! Thankfully Dylan is really good in the car and he sat happily waiting until it was time to go in. 

We went in and waited for all of about 2 minutes at the front desk before she appeared, which was fantastic! Dylan was then shown the spade for the sand and he was really excited going through the sets of doors to get to the room. He really enjoys playing in the sand so this is the task that he will always do at the start so that he begins with a positive and knows what to expect… Routine is key!! 

He happily played in the sand, smiled when she sang her little song and it was going fantastically! Though this went well last time too, so I didn’t build my hopes up too much though it did give me a smile! She then showed him the next item.
After a little protest he was more than happy to take part in the next few things. They were posting tasks, and this is something that he really enjoys at home and I had told her last week. She aims to put things around the room that he enjoys so it makes moving from task to task an enjoyable thing for him. After finishing the posting activities, he then had to move to the next table.

He wasn’t as happy changing to this table as he was moving to the previous activities but with some gentle encouragement and sitting him on my knee for a few minutes he was then really enjoying the activities and I was able to move away. He then proceeded to colour match on several different occasions which was fantastic!
Finally, then he moved onto the last task before a quick play in the sand and going home.

This week’s DIS was a huge success and I am hoping that all the others will all go as smoothly now that he knows what to expect when he enters the room.
I think not having to go into the waiting room was a huge help and I am very glad that she has made changes to how she usually greets the children who attend to try and enable this to be a positive experience for Dylan! 

Fingers crossed next week goes as well! =D

If you want to check out what DIS is or how the first week went check them out;
What is DIS?
Week 1

-WeeOhana

 

 

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DIS- Week 1

Before I start, if you missed me explaining what DIS is, check it out here then you will understand this blog a lot better.

I walked in feeling positive, we played in the waiting room… until another family came into the waiting room. Dylan started screaming, flapping, lashing out etc, so I took him out of the waiting room for a walk to calm him down and thankfully the lady arrived!

She showed him the spade for the sand and he was very happy, knew exactly t into the room and up to the sand. Perfect, I got my hopes up while I sat on the chair and watched him play in the sand and dancing along to the lady singing… but then it was time to change task.
She took his hand, showed him the object for the next task and led him over, kicking and screaming. She then asked if I could come and help her… by help her she meant hold Dylan still while trying to encourage him to do the task. Holding Dylan isn’t an easy task, he’s a lot stranger than he looks and when he is flailing around, screaming and grabbing at you it’s pretty hard to try and encourage him to do a task too!
She kept at it though and completed the tasks herself and kept showing him the different objects for the next task.

We got through 6 tasks like this, I’m not quite sure how I managed. It was tough, I have a very sore shoulder from battling with him like this on a daily basis but also mentally this was really hard. Having to restrain him while he is screaming to be free, having to try and encourage him to do things that he really didn’t care for, was very tough.
I had to keep telling myself that it was for his benefit, that it was to help him.

Thankfully she then brought out some dried lentils for him to play with and this settled him and he had lots of fun with these, then over to trains and some colour matching before the sand and home!

He managed to make it through 3 tasks out of 10 without having to be held and made to do them.
Let’s hope next week goes smoother.

Check out how week 2 went here!

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What is DIS?

The other day we went along to our first DIS appointment (I’ll explain what this is in 1 second!) and were told not to expect it to work out well for Dylan but they wanted to give it a shot anyway. So of course I was game to try it, I mean anything that will help him is worth a shot really isn’t it?

So; DIS stands for – Developmental Intervention Services. Basically what they try to do is help your child to prepare for going to nursery in the near future. They do this by encouraging them to move from one task to another without fuss and to sit nicely in a seat when playing.
Going from one task to another is something that a lot of autistic children find really hard and something that Dylan really struggles with. They encourage this by a lot of adult led play, and hand on hand play to encourage them to try the new things.
Also by use of an object to show to the child that the current activity has finished and its time to move on to the next one to see what this items purpose is.
They set up several things on various tables that your children like so that they hopefully find moving to the next table an enjoyable experience and not so distressing.
To be able to do the next task at the table they need to be sitting down in the seat so that they can enjoy it. At the start of this they made find this difficult but we got around this by letting Dylan sit on my knee at the start and then by gradually putting him on the chair and me sitting beside him and moving slowly away until he is then hopefully good-by the end of this at sitting down for a short period by himself.

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When we went today I wasn’t sure what to expect and after being told that they didn’t think it would work to well with him, I was trying not to get my hopes up. Though I went in feeling positive and fingers crossed. He wasn’t so upset by the waiting room this time, but I think that’s because I just let him free roam and he wanted to walk up and down the hallway so I let him do that rather than upsetting him and then this having a knock on effect to how well he coped with the DIS.
As we were taken into the room we met the lovely lady who was going to be doing this with us and his speech therapist was there to aid her with him as she knows what he can be like.
He went into the room without a bother which is pretty unusual for him in an unfamiliar place, and went straight over to the sand pit! Over the summer we have spent a lot of time at the beech filling buckets and emptying them so he loved doing this task, she then moved him onto the next one with lots of adult led moving as he wasn’t very keen on leaving the sand but then settled to the next few tasks well, after about 5 minutes he then decided he wanted back to the sand so she asked me if I would try him on my knee to try to encourage him to stay on task and surprisingly this worked wonderfully.
Though again after a few minutes he wanted back to the sand, she then decided that it was time to let him go back as he had coped really well with what she had done so far!
Fantastic news!
We then got asked a few questions and asked if we would like to try him with the six-week course, and I jumped at the chance. She told me that she would be very willing to do this as long as I agreed to be her helper while we were doing this to help encourage him and of course I agreed to this!

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Roll on the next six Thursdays mornings! =D
Check out how we got on here;
Week 1
Week 2

-WeeOhana