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My favourite humans < 3

We headed out on a little walk around a really quiet area a short drive from our house.
It is somewhere we go quite often as it is very quiet, lots of space for the kids to explore and waste energy and even better is that after the walk around the forest, climbing on the trees and running through the leaves there is a lovely little park with all that you could want in it, complete with gates so Dylan can’t just dart away.
While there this time I captured some pictures which I think are some of my favourite ones that I have. I have recently bought a beautiful big photo album so I am going to make sure to print out pictures to fill it with happy memories for us all to look back on.
Something I wish I had started a long time ago but never the less, on wards and upwards with my picture printing and memory making fun!

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These three humans really have no idea how much they mean to me, they are my favourites. I would do absolutely anything for them all and can’t believe my luck ❤

 

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Holiday!

I’ve been rather quiet on here as of recent, so here is a quick and short update as to why! I was off on the most amazing holiday in Disney World!! It was the most incredible holiday I have ever been on, and I am going to do a few posts for others who are heading over to have a bit of insight of the things there, how to get the disability pass they do and lots of others bits of advice.

What made it even more exciting was that we didn’t tell Amellia about the holiday until the day we were going. We went with my parents so we headed to there house and I told her we were just staying with them for a week so that she could get some quality time. Once we arrived I got Amellia to ask my dad what he had planned for us and he told her, she could not believe it. She asked me about 20 times “are we really?” Then my mum took her to see her and my dads suitcases and she went crazy! It was a really magical moment. They then took her over to the park while Dylan was happy pottering around the house to waste some energy before a crazy long flight!

I can’t thank my parents enough for making this holiday possible and so incredible. It was the break that I needed, seeing everyone happy, smiling, laughing and having the best time ever. Memories that we are all going to cherish forever.

Family are amazing. My family mean the world to me and I’d be lost without them.

-WeeOhana

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Honest & Open

Something I have always found important Is being honest and open with my children at a level appropriate to there understanding.

Recently Amellia asked me where she lived when she was a baby, and I told her that we used to live with nanny & grampy when she was first born, she then went on to ask who came to the hospital with me and I told her that nanny did. She looked at me a little confused and said that daddy came with me to the hospital for Dylan.

I then told her that we met daddy when she was only a few months old and that we moved in to his house after she had turned one.

She looked up at me very seriously and I was wondering how I would answer all the questions she might have but she just said one simple sentence that just summed it all up perfectly. “Well that makes my daddy an extra special daddy then because he chose me and wanted to be my daddy”

My heart melted, she couldn’t have got it more right. 💝 Ad loves her and treats her just like his own, as do his wonderful parents. She has an incredible bond with them all and is totally spoilt rotten.

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CDC Take #2

I’m really not sure how I feel right now, what thoughts are going through my head or how I’m even expected to feel. I just can’t pin it down to one feeling.. in all honesty, I’m feeling a lot of them all at once and it isn’t doing my head and heart any good at all.

We arrived 10 minutes before the appointment hoping that it would help to get Dylan settled before the appointment.. but boy was I wrong. He screamed the place down and continued to do so for the 15 minutes late that our appointment was too. The lady then came to get us and said she had heard him from when we had come in. (thanks for making us wait then!) We then went into the room with the other therapists and it all started to become very real.
When we went in Dylan was not a happy bunny, pulling us by the hand to signal he wanted to leave, screaming and standing by the door. Thankfully the speech therapist remembered that he loved pop-up toys so she brought this out to see if it would settle him. He settled for a little while then she tried to remove this to encourage him to try something else with another of the therapists there.. but he just wasn’t playing ball. He settled after a while with some coloring and posting games, typically he was very happy when it was time to leave.

As all this was going on, I was having questions thrown at me left, right and center. Well no, they were very good at making sure they didn’t talk over anyone or myself, but I think it’s because I was the one in the firing range it just felt far too much. She was asking if this was how he got on when he goes into new places, how he had improved and I told her with a smile all the improvements I had felt he had made and she half smiled and told me they were great. Unfortunately though they all veer down a very obvious path and not the path that you want your child to travel.

The first thing that we got ticked off her list of things to get sorted was an education plan. She said that she didn’t think he would cope in a mainstream school even with a 1:1. She said that she would worry about his safety and that it just wouldn’t suit him at all. So all the information for this has been sent off and we are just to await an appointment of when to go and see them for them to write-up a report.
If I was being honest with myself, I knew this was going to be the outcome. Though I was living in hope, denial and wishful thinking.

The next part did shock me, I knew in my heart and my head that he was autistic, it was blatantly obvious. She had told us at the previous appointment that what she suspected was autism but he was too young to say for sure; but she told us at this appointment that; yes it is autism and that he is severely autistic. She said that he ticks every box for classic autism. It was a shock how she described him as severe, but when you look at it from a realistic point of view, he really is. Everyday life is a real struggle for him, and clearly something he doesn’t particularly enjoy when you are taking him out of his safe spaces.

My emotions are everywhere, I have written this post still feeling numb, unsure and disconnected from my emotions, because right now I’m really not sure where they are.
Friends & family keep asking how do I feel, honestly, I really don’t know right now.
I’m trying to make it to the next day with a smile, trying to stop it from sinking in. I don’t know when it will sink it, it may be in a matter of days or months but I know when it does I wont be someone you want to be around. Well, more I wont want to be around anyone. I will hide away and more than likely my hubby will need to take time off work to help me through this.
It’s not a simple path that we are going to walk, I’m going to fall off the wagon and right now; it could be any moment.

It’s a huge thing, it’s life changing not just for Dylan, but for the whole family.

-WeeOhana

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Deliveries! =D

This week we got a few super cool deliveries!
One of them was a super amazing soft play mat that I had won in an auction on Facebook! If your interested in buying some soft play for in your house or business etc. I would really recommended checking out one of their auctions here!! They do them pretty regularly and there is always a bargain to be had!
When I saw this mat there was no way I was going to let it slip through my fingers!
It is the perfect size to fit in the little play corner we have in our room, blue and pink so means both my pair are happy and some wonderful stars stitched on to add a little magic! It is about the thickness of a gym mat, so wonderful for when the kids are throwing themselves about and works wonderfully as a head protector whenever Dylan decides to Do this.
Another winning feature on it for me was that it folds in half easily with a little grab handle, perfect for when we are having people over, or want a little floor space for train track building etc! Also very simple to clean, a quick baby wipe and it looks perfect again after any spills! I was more than impressed however with how quick I received this, I won the auction on Thursday, paid after dinner on Friday, it was posted on Monday and at my door on Tuesday morning! Wonderful quality, lovely customer service and super speedy delivery, I will be ordering some more shortly!
Here is a little video of Dylan enjoying dancing on the new mat to his favourite toy, BeatBo

 

The next delivery was one that took a little longer than I hopped, but boy was I pleased when it arrived! My sister sent me a link with what was the most perfect t-shirt I have ever seen. I then proceeded to look on the website and discover more and more amazing designs.. Luckily I had to be pretty controlled as the postage cost goes on weight of parcel and you can only have a certain amount in one parcel.. so I ordered us all one each of these t-shirts, but got a little disheartened when they didn’t do them small enough for little Dylan.. this didn’t discourage me though! I proceeded to place my order.. and discover that they did hoodies too! I mean .. check out this t-shirt!  (which I now have as a hoodie too)
img_6129So yes.. considering my blog name, and that this is also our favorite Disney movie I needed all of the things! I’m super impressed with how soft the t-shirts are, but I am very deeply in love with my hoodie.. fluffy on the inside, nice big hood, just perfect!
You can check out what they do here! They have three different designs each day that are at a cheaper price than the rest, but the others are also really reasonably priced and with some super awesome designs you wouldn’t find elsewhere!

 

-WeeOhana
x

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Normal? I think not!

I read something really odd on a Facebook group today. A lady was asking the group that because she is a stay at home mum her fellow thinks that when he comes home from work he gets to watch whatever he wants, chill on the sofa ignoring the children and what they want to watch and relax. She then makes dinner while he watch’s what he wants then she spends the evening watching his programs. She wanted to know if this was normal behaviour! What do you think? What happens in your house?

I personally think this is absolutely ludicrous! Firstly my little girl would not let my hubby come in and just chill on the sofa without jumping on him, quizzing him about his day and everything he did then filling him in with what she has done when he was at work. Then if he was to turn off the program they were watching, I’m sure there would be a fight! My reaction would also not be very pleasant! He has been at work all day, and yes I know that he works very hard etc and I’m not belittling that at all, but his kids want to see him. He should also want to see them too and share his experiences of the day and enjoy hearing what they have done!

Also I feel that a lot of stay at home parents really do not get enough credit! It is hard work, very hard work, it is enjoyable but tough. So why should one get to come in and just relax and forget about everything when the other has been at home with the children all day! Least the working one gets out of the house and some time away!

As for the who gets to pick what they watch at night.. in my house we are generally pretty good at deciding together. We generally have a series that we are watching together so will watch a few episodes or if we fancy a movie we will pick together! Obviously sometimes there are things that my hubby really wants to watch so I let him watch and vice versa but generally its a mutual decision with what goes on the T.V!
Why should one of us get priority?
We are both equal, not one better than the other.

WeeOhana xx