4

Crisis point with food.

We see the dietician regularly and have done for about a year or so now. Unfortunately it hasn’t proved to be very helpful and now we are at crisis point and that’s when she starts to panic and trying to desperately help. Reaching out to the other professionals she knows for advice.

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When we first went to see her Dylan was on the 75th centile. Even though he didn’t have a very varied diet he had one thing from most food groups and what he was eating he was eating in large quantities. At this stage I asked for advice on how to encourage him to try new things and was told to just keep offering it to him, do lots of sensory play but to not be too concerned as he was getting most of his food groups and she provided us with a powder to put in his drinks to provide him with his vitamins and minerals.

Next time we went to see her his diet was starting to be a bit more restrictive, he hadn’t gained weight but also hadn’t lost any so she said not too worry to much. She gave the same advice as previous and couldn’t give any other advice on how to encourage him to eat or offer any other support.

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This time he had dropped to the 50th centile and she wasn’t happy and said that if he was to drop more it would be serious. I voiced my concerns about him possibly having an allergy and this may be stopping him from wanting to eat. If he relates food to pain and only has these select few as safe and knows they don’t hurt then maybe that was why he was so selective. She said that may be true but at this stage didn’t do any tests etc.  Despite saying that she still couldn’t offer us any help, workshops or get us referred to anything else to try and help him.

Now he has dropped to the 25th centile and is malnourished. His height is dropping too and this is a huge concern as is now showing that his restrictive diet is effecting his bones and everything too. His diet has got worse and worse, he now eats around 5 things. She has prescribed these smoothie shake things to try and aid him to put on weight, but to put on weight from these he needs to be drinking 6 of them a day. We are finding it rather a struggle to just get one in, but I am so glad he will actually drink it if we trick him. If he doesn’t start to put on weight quickly he will need to go down the medical route, which is obviously a very scary prospect for anyone.
She is now thinking we need to start looking at how his gut is, his throat and all that linked to his digestive system. Also that we need to try these shakes for a few more days and if they still keep having an effect like they are at the moment that they think he may be lactose intolerant.

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It is an extremely stressful time for us. I am like a wound up cog, constantly on edge. Having to calorie count everything he eats each day, worrying that he wont put on weight and what if. .

Hopefully next time I can report back that he is putting on weight. Fingers Crossed!

 

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What’s your advice?!

Dylan has his first appointment with the dietician coming up soon!
I’m not entirely sure what to expect but if they can give us some advice on how to encourage him to move off this diet of toast, mince and rice crispies would be great!
I don’t have any concern about his weight really as he is pretty sturdiy and healthy looking boy, but eating a diet that is very minimal isn’t going to be the greatest for his inside.
We have to remember to do his food diary for three days before we go, but I’m pretty sure I could fill it in today and it would be right for then as we have tried everything we can think of to get him to eat other things!

To try and encourage him to have a more varied diet we have done from lots of messy play (which he really dislikes) too trying to sneak tiny bits in.. he spots it a mile off! At our first appointment with the CDC team we were told to do lots of messy play as your mouth is very closely linked to your hands with the feelings that they both feel.

We have persisted with the messy play, but he is still on dry pasta, sand and painting has recently been accepted but unfortunately that is about as far as he is willing to go at the moment. If we try him with things like shaving foam or anything even slightly goopy/sticky he will just leave the room and not come back in until it has been cleared away.

It’s hard work, but at least he eats something and isn’t wasting away.                            

Fortunately what he does like to eat is very healthy too.. though I’m not sure how long you can eat mince meat for dinner before it gets bad for you as I’m sure all that iron isn’t the greatest!

Have you any hints or tips to try and encourage him to eat a more varied diet?

Help!
-WeeOhana

21

My Sunday Photo- 16.07

This week we have been doing a few different things!
We popped over too see my lovely sister in her new work place- Indie Fude. It is a fantastic little shop with lots of wonderful food and treats all locally sourced! We grabbed some make your own pizzas and a few other bits for treats afterwards! Amellia really enjoyed the Aunt Sandras honeycomb and says it is the best she has ever had!
She made a heart shape pizza and couldn’t wait to tuck in! She loved it!

When we were visiting my sister we grabbed a very tasty chippy and Amellia just had to have a slushie she loves those things! I can’t get over how grown up she looks in this picture!                                                                        

Another day we went for a lovely walk around Crawfordsburn country Park and had fun running about in the wild flower meadow!

Our much loved fish Pudge got a new tank as he has nearly doubled in size since we got him and is forever growing! Suitably named after the fish in Lilo & Stitch too! =D

Dylan really enjoyed wearing his sisters hat! He looked like such a cutie in it! She didn’t mind at all, this whole being off for summer thing has really helped their relationship! =D

How has your week been?
-WeeOhana

Photalife
4

Horse Fun & Sensory Exploring!

Dylan absolutely loves horses. People always say that animals are great therapy for little ones,  but you really have to experience the joys that it brings them to understand! Whenever he is around my horse he is the most vocal, happiest little fellow around. Obviously anything that makes him vocal and making different noises is a very big plus, and hopefully will in time help him to form words!
Normally I only will take him to the horse if my husband is with me so that he can stand with him and walk around whilst I muck out and do all the fun things but as he was working and Dylan was wide awake I thought I would try and get most of the things done with him if he would play ball!

I left him in the car while I put Meg out as I didn’t want to have to carry him and walk her, just incase! It was also raining and no body likes getting soaked! I brought the wheelbarrow round and forks and then got him from the car, I knew he would either love it or hate it straight away, and it went the best way possible! He loved it, infact he seemed to be having the most fun I have seen him have in a long time!

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Look at that little face! He was so joyful, and even better was that he was touching things and picking up things he would normally go mad at even the thought of it being near him! He was picking up shavings.. and yes I made sure there was no poo in site and he stuck to the clean shavings! I couldn’t believe it, he was picking them up and throwing them into the wheelbarrow and laughing as he did it! He didn’t mind the feeling of the shavings in his hands or shoes! He was having the time of his life, we then walked round to empty the wheelbarrow and he loved pushing it.. although it did take a lot longer than normal to get it round!

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We then went on to make Megs food, I expected this to be a task trying to keep him in the room while I made them but he loved it! He was helping me mix the foods together, pouring the scoop in and even more amazingly, he took a bite out of the carrot that I gave him to put in  her food! He bit into a carrot, he didn’t start screaming, or licking his hand to get the taste and texture away, he just happily then placed it into her food! How incredible was it that he did this! He is still very much so on 10+month food, and biscuits! I couldn’t believe it! He was making so many different little noises too, of enjoyment! Noises I haven’t ever heard him make before, it was amazing as I’m sure you can understand!
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We then went onto fill the haynets, and I really couldn’t get over everything that was happening already and hay really does feel pretty spikey and odd, not really something you would feel in everyday situations! He impressed me even more and went on to pull out the hay and put it into the nets, I couldn’t get over it.
It was like he was getting so much enjoyment out of doing something that he loved, he forgot all about textures and everything! I couldn’t get over it and I still cant!
After we had done all the jobs he took me by the hand and walked me down to her field to go and see her. I kept saying to him when we have finished doing all the jobs we will go and see her, and it was almost like he was focused on getting the jobs done (very happily) to be able to go and see her. We then went down to her field, and he was overjoyed! Laughing away, hugging her, stroking her, and every time she sniffed him or even moved he was laughing away! We stood with her for about 30 mins, she was coming over and sniffing then running off, he loved it when she trotted off and did a big roll. I think it was the funniest thing he has ever seen, he ended up with hiccups he ended up laughing at her so much! When it was time to go, he wasn’t very pleased! Though we really needed to get going to get his sister from school!

I am going to make a big point of taking him up to see her a lot more, maybe not quite everyday as it does slow the whole process down and I can’t ride when he is there but it really did the world of good for him, I just couldn’t get over it!
To end this wonderfully happy & uplifting post here is some pictures of my girls! ❤

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WeeOhana xx

4

Food Revolution Day!

I know.. Food Revolution Day was the fifteenth of May, but it sure does need a good old look into!

I heard the fantastic song the other day when browsing through YouTube for a song to listen too and I came across the song that Ed Sheeran wrote for Food Revolution Day! If you haven’t heard it yet you should really listen to it and you can find it here!

The first thing that really struck me was what Jamie Oliver said (Sorry Rapped :P) in the first verse

Half the world is starving with too little to eat
And the other half die from being obese

This is so true.. and incredibly disgusting! Did you know that 42 million children under the age of five are either overweight or obese! How horible is that, the only people to blame for that is there parents! It made me feel sick when I read that statement! How could someone be so uncaring and blinded that they don’t see what they doing to there kids! It’s easy to see when your child is getting obese/overweight, and you are the ones who choose what you feed them! If you use the excuse that oh, but s/he wont eat the fruit/veg and prefers all the processed food… I’m sorry but a bit of tough love is going to go a long way! Would you rather your child has a harder life because they then go on to develop heart problems and the such and then dying early because you didn’t want to have your child crying at you because you wouldn’t give them that extra chocolate bar!

We need to teach our children how to cook, get them involved with the cooking in the kitchen and they will then enjoy the food more and will be learning life skills for whenever they are older! Rather than living off convenience food! There is a huge range of healthy dinners that can be cooked in the same time as convenience food, it just means you have to do something rather than just turning on the oven! Use it as a family bonding time and all cook together! Children today, are the first generation predicted to live shorter lives than there parents, how horrifying is that! We should be moving forward, not backwards!

The Food Revolution Day this year, is fighting to put compulsory practical food education on the school curriculum! I think this is a great thing! It will help children to start to learn about where there food comes from, whats in it, what is best for them and there children when they are older and how to cook lovely, healthy and tasty food!  We need to give our children and possibly our grandchildren the best life we can and providing them with these skills is desperately needed for our children to lead, happy, healthier and longer lifes!

Like Jamie Oliver says and i completely agree with;

This is every child’s human right!

From Jamie Oliver to Everyone;

If you can help me get millions of people to sign this petition, we can create a movement powerful enough to force all G20 governments to take action. Food education will make a difference to the lives of the next generations, so please help. I can’t do it without you.

So please; Sign the petition here then share it with your friends!
Lets kick obesity in the ass and give our children a better chance at life!

WeeOhana xx

2

Northern Irish Baking! – 15s!

These are some of the most simplest, and pretty darn tasty buns to make!
I never realised until recently that they were a Northern Irish thing until my sister told me! They really are the simple and darn tasty little things! Very simple to make too, so always lots of fun to do with the kids!
They are called 15s because you put 15 of all the ingredients in! You can make them using anything you want really! Here is what they are traditionally made using;

Ingredients
15 digestive biscuits
15 marshmallows chopped in half/30 mini marshmallows
15 Cherries
1 tin of condensed milk (Not 15!)
Coconut shavings
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Now in my house we aren’t cherry or coconut fans so I only used the marshmallows!
I will let you guys know how to do it with them though but obviously my pictures wont include them!

    1. Put the digestive biscuits in a freezer bag! Make sure all of the air is out of it, seal it then crush the digestive biscuits up using a rolling pin or something similar! Have fun doing this, let out your anger ;] Make sure there are no big bits of biscuits left! If there Is a few you can crumble them between your fingers!
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    2. Add in the cherries & Marshmallows and mix it all together

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    1. Empty in the tin of condensed milk and mix either using a spoon or if you want to get mucky, your hands! if the mixture feels gloopy and sticky at this stage crush up another two digestives and add them and mix them in!

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    1. Once you have done all that roll it out into a roll shape then put the coconut out on a surface and roll the 15s over it so that it coats the outside!
    2. Wrap it up in Clingfilm and refrigerate for a couple of hours, or if you want them done quicker, put them in the freezer for an hour!

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  1. Whenever they have been refrigerated, take them out and unwrap the Clingfilm and cut them up!
  2. Enjoy!

Hope you guys have enjoyed this recipe , its quick, easy and delicious.. or at least I think so anyway!

Let me know if you tried it and what you think! Do you have any baking you enjoy doing?

WeeOhana!

4

Thai Green Curry

I decided that I wanted to try and make something different for myself and the hubby! When I was in Wales visiting my family my aunt made this amazing Green Thai curry so I asked her for the recipe! Whenever I made it, it was also delicious so I thought I would share the recipe with you guys! It was off BBC Good Food! I don’t have a link to the recipe on there as she emailed it to me without the link! On the recipe I followed the numbers at the end in Brackets, this made 4 lots of the curry paste! So I froze three so that it is an easy meal to make whenever we fancy it again! I made it with chicken! I know some of the ingredients sound a little strange, but I got them all easily from a supermarket.

Here is the recipe for the curry paste;

Ingredients – enough paste for 4 ( x 4)


2-3 medium green chillies, de-seeded and roughly chopped ( 8 )
1 shallot, roughly chopped (1 large onion )
2.5cm/1in piece of fresh ginger, peeled and grated (10cm )
1 garlic clove, crushed ( 4 )
small bunch of fresh coriander, stalks and roots attached ( large bunch )
1 lemongrass stalks, chopped ( 3 tsp from jar )
½ lime, grated zest and juice ( 2 )
4 kaffir lime leaves, torn into pieces (if unavailable, grated zest of ½ extra lime) ( 10 )
1.5cm piece galangal, peeled and chopped (use extra ginger if unavailable ) (2 tsp jar )
½ tbsp coriander seeds, crushed ( 4 tsp ground )
½ tsp ground cumin ( 2 tsp)
½ tsp black peppercorns, crushed ( 2 tsp from mill )
1 tbsp Thai fish sauce ( 4tbsp )
1½ tbsp olive oil (5 tbsp )

Method

Blitz everything together in a food processer or mix everything by hand using a pestle and mortar (or plastic bowl and end of a rolling pin if you dont have one of these either). By hand gives you a chunkier paste but the flavours are as good and it feels a bit more rustic

 

This is how my paste looked after it was all made!

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Then I added it to a big saucepan, added a tin of coconut and brought it to the boil! After that then I added the chicken which I had previously diced and brought the paste down to a simmer! I then left that to simmer for half an hour.. and hey presto it was done and delicious! Even if i must say so myself!  So as you can see it is really a quick and easy meal once the paste has been made!

This is it cooking in the pot;

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I then made some noddles and a nan to go along with it! Here is a picture of the finished thing;

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I would love to hear if you guys make this and what you think of it! Enjoy! =]

WeeOhana xx