2

Hearing Test, Hopes & Goals.

I’m not sure if you will have read how Dylan’s first hearing test but I came away from it saying I would never take him too another.
Roll forward 16 months and he was due for a review as they couldn’t get a clear reading last time due to him screaming and being disgusted by the whole situation of it all. They told me that they would recall him in 6 months time, it didn’t go well either but not quite so bad. Again they couldn’t do the full test as he would not cooperate they told me he would be recalled again in 6 months but they weren’t worried about his hearing they just now had to get a positive result for their records.
When an appointment came again for him to be checked again but in a different hospital I put on my big girl pants and took it by the horns. I wanted to get this green check on his records, rule it out and onto the next thing.

He wouldn’t let them look in his ears for very long at all, but the lady knew straight away when he was getting distressed and didn’t force it on him unlike the ones at his previous appointments. She said the one ear she got a look in looked a little red, but seeing as it was winter time this occurs to most of us especially if we have a cold. We then went back to sit and wait for the next part, thankfully we didn’t have to wait long as he isn’t ever very happy about waiting in strange places.

In the next room he had to sit on my knee while a lady tried to get him to concentrate on something while another played different sound etc to test his hearing.
As they were doing this I was thinking to myself about how if it was his hearing we could fix this, help him and right it all.
As I found myself getting caught up in those ideas I had to remind myself that if he does have a problem with his hearing, we could sort that out but it wouldn’t solve the many other things he struggles with daily, he would still be autistic too.

When she left the room to go and talk to the lady doing the sounds I felt like I had just been to a job interview. Making him sit still, hoping he would behave the best and do his best in the series of tests he had just done.
Inside I was panicking a lot that they would come back and say that some of his problems was because he couldn’t hear very well, and that he would need to get that sorted alongside everything else that was going on.
Another part was hoping she would come back and say it was his hearing and that she had the perfect solution and it would solve everything!

Though I knew in my heart of hearts this was never going to happen, I say to people that I don’t like false hope that I want to live in reality with it all and I rather everyone be honest and upfront with what they think.
This is true, but sometimes I can’t stop the little bright ideas my brain thinks it has sneaking in and bringing a whole load of false hope and joy. When I realise I’m being crazy or when I’m even proved that I am wrong then it is a whole load of heartache.
This is why I try to live in reality and not give a whole load of false hope because it just knocks you back when you are climbing.
Obviously I agree with hope, everyone needs hope and goals.
I believe in attainable goals for my kids, ones I know they can reach or are close to succeeding in so that we can celebrate together rather than discuss things they haven’t reached yet. Celebrate everything, some things that you don’t even notice your children doing are huge milestones for children like Dylan and others. It really makes you appreciate the small things, like when he looks at you, when he tries something new, when he touches something he hasn’t before.
I know its going to happen soon so one of my goals for Dylan is that he will call me mummy soon and know I am mummy and not just use the world, another goal which is going to take a lot longer but I have accepted this is that when I smile at him for him to smile back.

-WeeOhana

5

Candyfloss, doctors, holiday!

I would like to start with an apology! I started off really well blogging every night, then on the weekend I was away on holiday and before that I started to get excruciating pain so was trying to get that sorted and with runs to the doctors and so forth I just couldn’t find the time to blog as was exhausted at the end of the day!

So would you like the happy holiday bit or pain bit explained first?
I think I’ll go for the pain first then end with the happy bit!

I started back to work at the start of September when the kids all came back from summer, I can’t remember if I have said before but I am a classroom assistant! Not the most strenuous of jobs but it has sent me on a downward spiral! I first of all got a pm extremely itchy rash and went to the doctors to be told that it could be my liver and baby may need to be delivered soon, which of course made me painc! Though the doctor told me to keep calm and wait for blood test results.. They came back all clear thankfully minus a High white blood cell count, which is a sign of infection so doctor said the rash must just be a wee viral thing and that’s why they were high. This was great relief, and thankfully the itching has gone away a lot now but still is there, though isn’t affecting me at all compared to my new problem! I have been told I have pelvic girdle pain / symphysis pubis dysfunction (SPD). To anyone who hasn’t experienced this when pregnant, you are so lucky! To anyone that has.. Hello my fellow penguins! I currently feel so useless.. I can’t even drive or lift my little one onto the toilet which of course for a recently toilet trained little one doesn’t make life too easy! It is such an excruciating pain! I have today been to physio and been given a very attractive large tubugrip to hold me together! It seriously feels like my hip is just gonna fall out of place at times! I am back next week for her to asses how it is helping or not and what next steps to take! She told me the joyful news that they can’t stop the pain, and yes it is going to get worse but they can give me things to help ease it.. Just the news I wanted! At least I’m in the final stretch now, but it’s going to be the longest 12 weeks ever with this pain and being basically stuck at home constantly when the other half is in work! I think it started when I went back to work as you are constantly bending down to small tables, sitting on small chairs, running back and forth to the photocopier etc! So I have been signed off work now till my maternity leave starts! I really dislike the feeling of being so useless to my little one.. I can’t even take her to the park.. And trust me my little one has a load of energy and needs to waste it somewhere so her being stuck in a house with a crippled mummy isn’t to fun for her either! She asks me every morning am I better yet, and feeds me sweets to make me better! Getting fed sweets is awesome.. But still heartbreaking seeing how upset she gets about and how desperate she is to make me better! Anyone else experienced this and care to share a few tips in coping!? I’m open to try everything!!

Onto the happiness and to stop whinging! My parents, me, the hubby and my little one had booked a long weekend away, before all this started and I didn’t wanna change or cancel it, as going away is far more relaxing than being at home anyway! It was a three hour drive and with a couple of stops along the way we all made it safe and sound! We went to a fantastic family friendly hotel, they had a play park, a soft play room and lovely surroundings which is just perfect for little ones! Oh and a swimming pool which she had an absolute blast in with my dad! We went to a little town close by that had an aquarium, and we were lucky enough to go a day that the octonauts were there! My little one adored it as would most two year olds that have seen this program! There was question all through the aquarium, you got to touch a starfish, and finally meet them! Oh and not to forget seeing nemo was a big highlight too! It was luckily enough a lovely sunny day after so we went for a short walk (as that’s all I could manage unfortunately) and got some candy Floss! I’ll put pictures below to show how much it was enjoyed!
Then the next day me and my mum got a lovely wee treatment in the spa and it was super relaxing and very nice as I didn’t have to move to much! Lol! My hubby took the little one to the play park and for a lovely walk too so she had a ball while I was getting pampered so it made it even nicer!

What I love the most about family friendly hotels with lots of family’s in them is that when you are at the restaurant which is done quite fancy with fancy food, and a great kids menu (batman burger, flounders fish fingers etc) there were also lots of other family’s with little ones! So you don’t kind if they are a little noiser, doesn’t put you on edge and super nervous of your little one spoiling someone else’s romantic dinner as they sat the couples and people without kids in a different area! By the end of the meal all of the kids from all the tables ended up sitting in a circle playing with there sticker books and colouring in! We then arranged to see a few of them in the swimming pool the next morning, so it was jut lovely for all the kids! Meant the kids enjoyed dinner and the adults got to chat a bit with who they had come with while they were entertained by each other! Or was a fantastic hotel and a lovely weekend! Just wish I hadn’t have been so sore so I could have enjoyed it a bit more! Amellia keeps asking for Grampy to take her back though so she enjoyed and that’s all that matters!

Here are the candy floss pictures! Sorry it has been a while and going to be back to blogging frequently again, especially seeing as I’m off work now and sitting about a lot! Hope you are all well! 🙂 WeeOhana!!

IMG_0054.JPG

IMG_0053.JPG