We started this year off with a rather big and unexpected thing.
Amellia had an appointment with a pediatrician to see what they thought and how to best help her in day-to-day life. Seeing as this was her first appointment I assumed that it was just going to be a chat with the paediatrician about our concerns, getting a first impression on Amellia and referring her on to a long waiting list if she thought necessary.
No referring on, no come back in a few months, no we want to get in touch with the school and see what they say, we walked away with a diagnosis, a prescription and a review in 6/8 week to see how it is going.
Amellia got diagnosed with ADHD.
The pediatrician said that it clearly affects her every second of every day and that she needs the help as soon as possible to help her achieve all that she has. I was also told that they think she has dyspraxia, a social disorder, sensory issues and a learning difficulty. Though we are going to get her medication right and let her get adjusted to this before they investigate the others as this is the one effecting her the most at the moment.
It was a tough day for me as I said before I thought it was just for a chat. I suppose in reality we were expcting the diagnosis at some stage, but not that day and not along with the other things too. My mind is all over the show at the moment and sometimes I want to just cry and others im just so glad we have got her the help she needs and hopefully now once we have the medication sorted she will be able to achieve all she is capable at school and in life.
One thing that I am adiment on and that I made very clear to the pediatrican is that if I feel the medication is changing her personality I will be stopping it. I want it to help her settle etc but I do not want her bubbly and fun loving personality to go. She reassured me that we would find the right medication for her to keep her personality.
What I found incredibly amazing from Amellia and showed just how self aware she is was when the pediatrican asked her how she coped in school and Amellia said she wished she could sit still longer to learn and that she got annoyed at always having to move.
Amellia is aware about her diagnosis and about the tablets that will help. I have also made her very aware that it may take a while to get the right dose. We have also started a diary that we are doing together each night to keep a check on how it is making her feel and how she feels about it all.
Over the next few weeks I’ll share more as I come to terms with it and how the medcine etc works for her, how she feels about it all etc to help anyone else who is in or goes through the same thing.
With Dylan starting school recently I have had a lot of people giving me their opinions on something which I feel strongly about and tell them before they even start with the back and forth.
My child, my choice.
I don’t agree with putting my child on a bus to and from schools. He’s three ffs. I wouldn’t put a neurotypical child on a bus even if it was a specific one for the school so I’m defiantly not putting my neurodivergent child on one.
People argue that it gives me more time, but I would rather do what is best for my child than what is best for me. I’m pretty sure that’s normal for parents.
I hear things like oh but everyone else does it.. I’m not a sheep thanks very much, I think for myself and what benefits my family the best. Also, just because everyone else does it does not mean it is right. Many things are questionable that “everyone’s does.
Not long till he starts nursery now, where did the time go!? They grow up far too fast and with them both in school now I know the years will fly by even faster 😦
Something I have always found important Is being honest and open with my children at a level appropriate to there understanding.
Recently Amellia asked me where she lived when she was a baby, and I told her that we used to live with nanny & grampy when she was first born, she then went on to ask who came to the hospital with me and I told her that nanny did. She looked at me a little confused and said that daddy came with me to the hospital for Dylan.
I then told her that we met daddy when she was only a few months old and that we moved in to his house after she had turned one.
She looked up at me very seriously and I was wondering how I would answer all the questions she might have but she just said one simple sentence that just summed it all up perfectly. “Well that makes my daddy an extra special daddy then because he chose me and wanted to be my daddy”
My heart melted, she couldn’t have got it more right. 💝 Ad loves her and treats her just like his own, as do his wonderful parents. She has an incredible bond with them all and is totally spoilt rotten.
Soon I am going to sign-up to do some online-training and I’m rather excited for it!
I have been hunting online for a course that will help to extend my knowledge and understanding on Autism, and I have finally found one that sounds fantastic!
What I really like about this course is that is has been made and written by people who are on the autism spectrum. This too me means that it will have an even better insight into autism than the courses written by someone who isn’t on the autistic spectrum.
The course is complied of five modules which are:
- Understanding autism
- Autism and communication
- Autism and sensory experience
- Autism, stress and anxiety
- Autism: supporting families
I’m hoping to learn many things from this course that will enable me to understand Dylan a lot more and ensure that I provide him with the best opportunities that I can.
Once I have completed this course I will receive a Continued Professional Development certificate which will be a great addition to my qualifications!
I can’t wait to share with you how I get on with this course and to help broaden your knowledge about autism while I broaden my own!
This course was founded by The National Autistic Society! It is also a great website to pop along too to find out lots of information out about Autism!
Last week we had our first appointment with the dietician. I was very excited for this appointment and couldn’t wait for some new ideas on how to encourage Dylan to eat or at least even try more things!
At the moment his diet is extremely limited and we have tried everything that we can think of possible ways to encourage him to try other things also to drink things such as milk to ensure he is getting all the goodness he needs to grow up strong and healthy!
We haven’t had much luck at all, and he is now starting to go off things that he used to eat.
We had to weigh out and write down what he had eaten in the past three days and when it was all wrote down it hit me with how little he really did eat. Every day breakfast, lunch and dinner is exactly the same with a variation on snacks and what he has after.. but by variation I mean three different things.
We are lucky because he does drink pure orange juice and apple juice, though he wont drink anything apart from them.
Going in with high hopes and expectations for ideas of how to encourage him to eat more, drink more and live a little healthier and coming out with no new ideas at all on anything was rather disappointing.
She told us that his diet was extremely limited and that we had to try to encourage him to eat other things. (What did she think we had been doing!?) When I asked her how we could encourage him to eat new foods she just said to keep trying what we were already trying. This was without even asking what we were trying.
Something that she did do though was prescribe him a multi-vitamin powder type idea that has all the essential vitamins and goodness in! Though she did say in her next breath that she doesn’t think he will take it, so yeah. I have my fingers crossed that he will, but her lack of confidence wasn’t the greatest.
We learnt something that we weren’t aware of too, bread has calcium in it! Well, the Hovis best of both contains calcium! If your little one isn’t calcium this is a great way to up the intake in their diet! =]
Fingers crossed we can come up with some new ideas ourselves to try to encourage him to widen his diet a bit!
If you have any tips please let me know!! =D
We have been trying to teach Amellia how to ride her bike for the past few days, at the start I thought it was never going to happen! She couldn’t stop nervous laughing, singing and just messing about!
We started off with the being really nice, patience, singing along and joining in with all her jokes. Keeping on the flat and slow pushing to start with.. until we realised this was getting us no where apart from a little girl who just couldn’t stop laughing!
We told her that she had to take it seriously if she wanted to learn and we were a little tougher, though reassuring, giving her all the compliments and the encouragement. This seemed to be the best way forward! By the end of the first day she had so nearly got it, but she had got tired and was asking if she could go and play in the park so we decided to call it a day and try again tomorrow!
The next day she more or less had it! But it was very apparent that her bike was pretty tiny for her and was making it more difficult to pedal! We told her if she would like, we could get her a bigger bike as an early birthday! She was ecstatic and just couldn’t wait to get the cycling down really well so she could head out to find a new bike!
This is the bike she picked and as you can tell by her rather excited face that she really loved it! We went round all of the local shops and typically she had her heart set on this one from the very first shop. It is based on one of her much-loved Disney movie The Descendants, we even managed to get her a matching helmet and bell, she couldn’t wait to pick it up the next day! Lucky for her though, the lovely man called me when she had just gone to bed to tell me he had already built it and if I wanted to pop over and get it I could, she was completely over joyed when I produced it the next day without having to go to the shop to pick it up!
She couldn’t wait to take it out for a spin, and we couldn’t wait to see what difference it made being on a bike that wasn’t for tiny little ones!
Off she went, with daddy by her side and the bike that was the right size made all the difference!!
Super proud mummy & daddy right now! =]
Look at her go!
So my advice for teaching your little ones how to ride the bike;
– Let go when they think you are still holding on!!
Hope you are enjoying your summer, I’m loving having both my kiddywinks together! =]
Super Proud, emotional, over-joyed, amazed, the list goes on!
Today I have heard my little mans voice for the first time! He is starting to learn his colours and loves the alphabet. He knows the sounds of nearly all of the letters in the alphabet, but today he started to say some colours! Its the first glimpse we have heard of his voice forming words.
This sort of thing really makes the hard times seem a little less tough. This isn’t easy, infact; this is the toughest thing I have ever done in my life.
I don’t know how I am doing it and keeping a smile on my face. Often people say to me “I don’t know how you are doing this?” I’m never quite sure how to reply to that.. because I’m not sure how I’m doing it. Honestly, I’m going with the flow, doing my best I can for him to help him and encourage him, I try to enter his world rather than forcing him to join ours. I do it, because I am his mum and if I didn’t, then who else would, I do it because I love him, because he is my son, because he deserves a happy life as much as you and I do, because he is clever, funny, handsome, adorable and perfect in every way to me.