9

Leaps & Bounds of progress!

These past few months Dylan has been slowly progressing, but over the past month it seems to all be coming together. We have many words now which is absolutely incredible seeing as every time he has been seen by his pediatrican we kept getting reminded that not all autistic children talk and not to get our hopes up. He can request things like his iPad, juice etc, it’s amazing to see and I have got a lot of hope for the future now and I’m sure his language skills will continue to develop and maybe one day we will be able to have a conversation with us! It gives us a lot of hope and really lifts spirits.

In school they have started to use pecs to help him move from one place to the next, his anxiety is brought down a lot with these pictures and I am now running about like crazy taking pictures of everywhere we go so that I can use them at home with him too. I am hoping it will help when out and about with him so that we can keep him calm and hopefully enjoying what we are doing rather than worrying about what is to come next.

He is starting to try new foods, well he has licked a yogurt and they are trying to encourage him to try new things in school via pictures and are going to get me some to try at home with him, which is a really exciting prospect. Dylan’s eating has always been a worry for me, as much as the dietician says it is fine because he isn’t losing weight it cannot be healthy for him and is not ideal. I would love to be able to just pick him up something when out and about but unfortunately at this moment in time that isn’t really attainable as he doesn’t eat very much at all especially for dinners and lunch. Maybe one day he will eat a sandwich, now that would be incredible!

He has also started to interact a lot more with Amellia and the other children he knows. He will ask them for races using his makaton that he is starting to pick up and what is even more amazing is that the kids around us are so great too him. They understand him really well and it is so great to see them running around together and enjoying each other’s company. Something again I wasn’t sure I would ever get to experience with him.

Something he has started to really enjoy also is playing mario, he is learning how to control him and enjoys walking him around the map. Before he just used to hold the button and laugh as he fell off the edge, which is funny.. but finding something he really enjoys doing and playing is great!

Obviously he still has his hard times, but I totally adore him and he is simply wonderful. I will continue to encourage his growth and I truly believe give a child the tools and encouragement they need and they will progress in there own time!

7

Honest & Open

Something I have always found important Is being honest and open with my children at a level appropriate to there understanding.

Recently Amellia asked me where she lived when she was a baby, and I told her that we used to live with nanny & grampy when she was first born, she then went on to ask who came to the hospital with me and I told her that nanny did. She looked at me a little confused and said that daddy came with me to the hospital for Dylan.

I then told her that we met daddy when she was only a few months old and that we moved in to his house after she had turned one.

She looked up at me very seriously and I was wondering how I would answer all the questions she might have but she just said one simple sentence that just summed it all up perfectly. “Well that makes my daddy an extra special daddy then because he chose me and wanted to be my daddy”

My heart melted, she couldn’t have got it more right. 💝 Ad loves her and treats her just like his own, as do his wonderful parents. She has an incredible bond with them all and is totally spoilt rotten.

0

Sibling Love.

My daughter always makes me proud, and I try to ensure that she is very aware of how proud she makes me. Especially when it comes to her brother.
Yes, like many brother and sisters they fight, dislike each other at times and want the same toy as what the other is playing with.
Though having a brother like Dylan is a lot more challenging than just the usual arguments and misunderstanding that happen between siblings.
It means that Amellia has had to learn a whole new way to play, interact and socialize with him among with many other things.

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She is currently waiting for him to say her name and asks on a regular basis do we think he will ever say her name. This is always a hard questions to answer because as much as we hope he will gain speech soon we cannot guarantee or promise this.
She longs to play duplo with him, kick a football about and get up to mischief together like you would expect from having a sibling around.
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She has adapted how she plays with Dylan, and if she really wants to get his attention she knows how to do this;will wave her hand in front of his face, or show him a train close by and this generally works. He also loves being spun in his chair that she has so she will often spin him in this and it is great when you can hear them both giggling away together. Its times I treasure and they really melt my heart. You learn to really treasure these moments as they are far and few between, so when they do happen they are just magical.
Sometimes though it just makes him angry and lash out. Unfortunately but also thankfully she is getting better at dodging his aggressive swings for her when she does something he doesn’t like, or want to do. She is starting to learn the signs for when he wants to play or for when he just needs left alone.

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Amellia really keeps me thinking positivly about all that is going on in our little family, yes sometimes things are really tough for her and we ensure that she gets time out to be a typical 5-year-old without having to worry about leaving if Dylan dislikes a place or whatever we have chosen to do that day but her understanding when Dylan gets overwhelmed by a place is absolutely magnificent. She will often say to me if it just me taking them to the park that she is ok with leaving if Dylan doesn’t like it when we get there.
I also really admire how proud of her brother she is, when we are out and she is talking to someone she will openly say about her brother having autism and people are generally shocked by how open she is and never quite know what to reply. She will then go on to tell them about Autism and how it affects her brother and that sometimes he will get mad, but he isn’t doing it to be mean, he just can’t understand you and doesn’t know how to tell you what he thinks.

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Yesterday she came home from school and nearly had me in tears.
She came up to me and told me that we don’t need to send Dylan to the school that we have seen for him because she is going to open a school just for children with autism. She is going to make it with a soft play room, sensory room, colouring and a room especially for Dylan with Thomas the Tank engine all over it.
Then she went on to tell us about how she will let them play most of the day so that they don’t get upset and she will try to teach them but if they get upset she will have an Ipad there for them to use to help to calm him down and they can then play letter games on it to help them to learn.

My heart melted.. My little girl amazes me everyday. She is so understanding, caring, loving and wants to just help in every way that she can.
When we explained to her that he will be a little to old when she has done she said that’s ok then mummy, because I can help other children like Dylan and he can come in and help me ❤img_4646

Dylan is so lucky to have a sister like her, and she helps him so much and wouldn’t ever be without him.
She tells me often that when I get older and I can’t look after Dylan anymore she will live with him so that she can keep him safe and make sure that he has the best life he can. She doesn’t want to get married or have any children so that she can always be there for Dylan when he needs her.

Simply put; I think he is the luckiest little brother and she is the most understanding big sister around.

-WeeOhana

5

How I escape..

Yes ok, I’m late to the party. Recently I have fallen in love with Spotify.
My whole life I have been a huge music fan, music is my escape and always has been.
I can listen to the majority of music and enjoy it and appreciate the work that has gone into making the track and the lyrics!

I have spent ages trawling through Spotify and rekindling my love for all the music I used to listen to years ago, finding out that they have new albums and have changed their style a bit. My phone though is not enjoying the new love for Spotify and downloading all the music to listen to it when I’m out and about! It’s constantly shouting at me to delete stuff as it has no space.. that’s the bad thing about Iphones.. no micro sd card slot. New iPhone will be one with a bigger memory! Can’t wait till December so that I can get my new phone, come on contract hurry up and finish already!
musicHeadphones in or up loud in my car music always helps me. If I am happy I can listen to happy music and be all happy and sing along with it, if I’m angry I can scream along, if I’m sad, I can sing and cry along and there is a song for every single emotion! It can also totally decide my mood, if I’m feeling a bit indecisive and I put a happy song on then it generally perks me up a bit for the rest of the day.. unless it’s too happy then it just really annoys me!
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One of the features that I really love is that it makes daily mixes for you from a selection of music that you have added to your favourites and puts like music together, its great when you’re not entirely sure what you want to listen to but know the genre! It also does a discover weekly which has new music in it for you that is based on the things you like too! It’s such a clever little thing!
SpotiSorry, just a short ramble about my love for music and Spotify today! Hubby is playing the PS4 so what better way for me to spend it, listening to music on Spotify and blogging about it to keep my mind busy!
Dylan has his next CDC clinic next week where they are going to start his education plan and refer him on etc, so my mind is on overdrive these past few weeks!
Back to music though, If you don’t have Spotify I recommended trying it out! I wouldn’t be without it now!
You would swear I was bribed to write this.. I wasn’t. I just really love Spotify!

-WeeOhana

9

Sensory play outside! =]

It has been simply wonderful weather here for the past few days and we have spent lots of time out in the back garden relaxing and enjoying the safe space we have.

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We recently purchased them that wonderful little Smoby activity car that you can see, it is wonderful! Has a great sized slide on it, a wheel you can turn and it has a horn with several different noises, a key to turn and to make it even more wonderful the bonnet opens and you can put whatever you want in it! It also then comes away from the car for if you want to wash it or empty out whatever you have put in it! The reason we went for this activity car is because Dylan can get in and out of it himself and climb up and go down the slide by himself too!

Today I decided instead of putting the expected of sand into it, to put some soil that I had from planting my pepper plants into it to see what he would make of it!

He got stuck right in and really enjoyed it! He was shovelling it up and filling the plant pots up and then emptying them! He was having lots of fun and played with it for a long time!

He wasn’t keen on it getting on his hands and when emptying out the plant pots was very careful not to touch it with his hand and was always using the shovel when moving the soil about! He had lots of fun though and was happy doing this for a long time so I am hoping with a few more days of sun and playing with the soil he will start to touch it with his hands!

My precious little man, who means the world to me ❤
WeeOhana x

0

Normal? I think not!

I read something really odd on a Facebook group today. A lady was asking the group that because she is a stay at home mum her fellow thinks that when he comes home from work he gets to watch whatever he wants, chill on the sofa ignoring the children and what they want to watch and relax. She then makes dinner while he watch’s what he wants then she spends the evening watching his programs. She wanted to know if this was normal behaviour! What do you think? What happens in your house?

I personally think this is absolutely ludicrous! Firstly my little girl would not let my hubby come in and just chill on the sofa without jumping on him, quizzing him about his day and everything he did then filling him in with what she has done when he was at work. Then if he was to turn off the program they were watching, I’m sure there would be a fight! My reaction would also not be very pleasant! He has been at work all day, and yes I know that he works very hard etc and I’m not belittling that at all, but his kids want to see him. He should also want to see them too and share his experiences of the day and enjoy hearing what they have done!

Also I feel that a lot of stay at home parents really do not get enough credit! It is hard work, very hard work, it is enjoyable but tough. So why should one get to come in and just relax and forget about everything when the other has been at home with the children all day! Least the working one gets out of the house and some time away!

As for the who gets to pick what they watch at night.. in my house we are generally pretty good at deciding together. We generally have a series that we are watching together so will watch a few episodes or if we fancy a movie we will pick together! Obviously sometimes there are things that my hubby really wants to watch so I let him watch and vice versa but generally its a mutual decision with what goes on the T.V!
Why should one of us get priority?
We are both equal, not one better than the other.

WeeOhana xx