Hearing Test, Hopes & Goals.

I’m not sure if you will have read how Dylan’s first hearing test but I came away from it saying I would never take him too another.
Roll forward 16 months and he was due for a review as they couldn’t get a clear reading last time due to him screaming and being disgusted by the whole situation of it all. They told me that they would recall him in 6 months time, it didn’t go well either but not quite so bad. Again they couldn’t do the full test as he would not cooperate they told me he would be recalled again in 6 months but they weren’t worried about his hearing they just now had to get a positive result for their records.
When an appointment came again for him to be checked again but in a different hospital I put on my big girl pants and took it by the horns. I wanted to get this green check on his records, rule it out and onto the next thing.

He wouldn’t let them look in his ears for very long at all, but the lady knew straight away when he was getting distressed and didn’t force it on him unlike the ones at his previous appointments. She said the one ear she got a look in looked a little red, but seeing as it was winter time this occurs to most of us especially if we have a cold. We then went back to sit and wait for the next part, thankfully we didn’t have to wait long as he isn’t ever very happy about waiting in strange places.

In the next room he had to sit on my knee while a lady tried to get him to concentrate on something while another played different sound etc to test his hearing.
As they were doing this I was thinking to myself about how if it was his hearing we could fix this, help him and right it all.
As I found myself getting caught up in those ideas I had to remind myself that if he does have a problem with his hearing, we could sort that out but it wouldn’t solve the many other things he struggles with daily, he would still be autistic too.

When she left the room to go and talk to the lady doing the sounds I felt like I had just been to a job interview. Making him sit still, hoping he would behave the best and do his best in the series of tests he had just done.
Inside I was panicking a lot that they would come back and say that some of his problems was because he couldn’t hear very well, and that he would need to get that sorted alongside everything else that was going on.
Another part was hoping she would come back and say it was his hearing and that she had the perfect solution and it would solve everything!

Though I knew in my heart of hearts this was never going to happen, I say to people that I don’t like false hope that I want to live in reality with it all and I rather everyone be honest and upfront with what they think.
This is true, but sometimes I can’t stop the little bright ideas my brain thinks it has sneaking in and bringing a whole load of false hope and joy. When I realise I’m being crazy or when I’m even proved that I am wrong then it is a whole load of heartache.
This is why I try to live in reality and not give a whole load of false hope because it just knocks you back when you are climbing.
Obviously I agree with hope, everyone needs hope and goals.
I believe in attainable goals for my kids, ones I know they can reach or are close to succeeding in so that we can celebrate together rather than discuss things they haven’t reached yet. Celebrate everything, some things that you don’t even notice your children doing are huge milestones for children like Dylan and others. It really makes you appreciate the small things, like when he looks at you, when he tries something new, when he touches something he hasn’t before.
I know its going to happen soon so one of my goals for Dylan is that he will call me mummy soon and know I am mummy and not just use the world, another goal which is going to take a lot longer but I have accepted this is that when I smile at him for him to smile back.



Q & A for my five year old!

When my daughter was three I asked her some questions and the answers really made me giggle, You can check them out here! So I thought I would do it again today now she is 5 just to see how her answers had changed!
Here is the end result;

Without any prompting, ask your child these questions and write down exactly what they say. Its a great way to find out what they really think

1. What is something mum always says to you ?
(Her nickname)

2. What makes you happy?
When daddy makes me laugh

3. How does mum make you laugh?
By being really silly

4. What makes mum sad?
When I don’t snuggle you

5. What was mum like as a child?

6. How old is mum?

7. How tall is mum?
Taller than me

8. What is mums favorite thing to do?
Having a mummy, daughter day

9. What does mum do when you’re not around?
Read her book

10. What is your mum really good at?
Looking after me & Dylan

11. What is mum not really good at?
Not good at making special breakfasts.. Daddy always does this

12. What does your mum do for a job?
Keeps me & Dylan happy

13. What is your mums favorite food?

14. What makes you proud of your mum?
When she does magic tricks
(I didn’t know I could do magic tricks!)

15. What do you and your mum do together?
Have girly nights when daddy is at work

16. How are you and your mum the same?
We have brown hair and brown eyes

17. How are you and your mum different?
We dress differently

18. How do you know mum loves you?
Because she kisses me and gives me hugs and tells me

19. What does mum like most about dad?
He looks after me and Dylan good

20. Where’s mum favorite place to go?
Going to Next with me and buying me clothes

21. How old was mummy when she had you?


Why not ask your children and see what they say! Its pretty funny to hear there take on simple things! =] Let me know if you do I would love to check it out!


Being Positive is Tough!

As a parent you are expected to always be positive, happy go-lucky and love everything that you do in your life that involves your kids. When you are with you kids or even around other kids, or any human really you are expected to have a smile, have lots of gossip to share and happy stories. Is parenting really all positive and great fun though? A simple answer no; no it isn’t.

Being a mum, a parent is really tough. I am currently a stay at home mum and  it is really tough, tougher than most jobs. You have to have a smile, willingness to do arts & crafts, answer 1000 questions, wipe bums, make snacks, do baking, colour, read books, play pretend, cook dinner, recook dinner as they changed their mind, and many other things.. all on a daily basis. You have to do all this while doing a dance or singing or whatever other thing your child enjoys and when they eventually go to bed and fall asleep you’re so mentally exhausted from keeping up this positive persona that you yourself are exhausted or you end up just sitting watching some mind numbing program on T.V.

Then when you see friends, especially friends who have children you are expected to gush to each other over how wonderful you children are, what new things they have learnt and just why they are simply amazing. All while showing them the latest pictures you have snapped of them, for your friend to then tell you how beautiful and wonderful your child and you do the same to them about their child. Just being honest here, but as much as I love my kids, I would love to not have to gush over them especially if I’m with a friend. In-fact I would love to be able to be open and tell them how I am really feeling, the struggles, share the lows as well as the highs. Recently though anytime I have mentioned a low to anyone they always come back with “Oh it will be fine”, “You never know, it will all be OK I bet” and all that positive cack. Now, I am one for trying to keep upbeat about all that I have going on but some-days I want to have a moan and a cry about how tough it is, and I want to have a friend who will talk to me like it is real life; For them to help me accept what is going on in my life. To help me accept it rather than fill my head with fluffy nonsense and denial.

I’m going through a lot with my family at the moment and I have really realized who is there for you and who just wants to be your friend when it suits them. I have lost several friends recently, but hey. There loss right? I told a friend once we had been to the CDC clinic about Dylan how it had went, that they would need to discuss special schools etc next time we went back as he was too young .. her reply “Can we please talk about something positive?” … I know right! Well I just didn’t reply. It really upset me, when I needed a friend to chat to and really let my feelings out too, they blew me off. Acted like I was complaining about a stubbed toe or something. There we go though, that’s another example of why being positive and why being expected to be positive is tough. I’m sure any parent could see how this would be a hard, upsetting and life changing thing for me, but yet my friend still expected me to be positive? I’m sorry but that just doesn’t make sense to me.

So next time you see a friend,your partner, your parent whoever it is you normally talk too, tell them how it really is.If your finding something tough tell them, if you need someone to rant, rave or cry at. Do it! Please do not hold it in. If you don’t have someone you feel comfortable to do that with, I’m here. I’ll be your someone to rant,rave and cry at. Don’t be afraid. Head to my Facebook page and message me and I’ll get back to you as soon as possible. I hate to think of people holding all there true feelings in, these emotions and words that need out; let them out. Your mental health is very important, and if you go around always being positive, one day it will catch up with you, trust me.

I asked a few of my blogger friends; Why do you think being positive all the time is hard? Here is how they answered! =]

Amy who blogs at The smallest of things said- “Because sometimes they push me until I’m hanging over the edge!! 😂😂
(kids sure do have a good knack at doing that don’t they! They always know the right (or wrong buttons to press)

Jemma who blogs here said- “It’s just so draining. It’s like wearing your fake smile for people you don’t like. You only have to do that for a little while if you see them, but with your kids it’s 12 hours a day-non stop!
Don’t get me wrong there are genuine positive moments but the majority aren’t true and soooooo tiring!
(I couldn’t agree more! That fake smile has to constantly be there. It isn’t fun always having to play pretend!)

Samantha at Porridge and Parenting answered- “Because it’s impossible to be positive 24/7. You could be the happiest person in the world whose glass is always half full but that is unsustainable all day every day for the rest of your life and essentially you are a parent all day every day for the rest of your life.”
(Too right, it is impossible! One day it will wear you thin if you keep up the act!)

Helen from mumatron says “I think it’s hard because it’s unnatural. It’s more normal to show a range of emotions.”
(It sure is! We were given emotions to show them, not to try and disguise them as this wonderful happy, positive person when we are feeling quite the opposite sometimes!)

Sarah who blogs at Whimsical Mumblings replied with- “I broke down into tears the other day in front of my children, and felt SO guilty. It’s hard not to show these emotions as well as they good ones. I honestly don’t think we should hide them though! Show your little ones it’s ok to express your emotions.”
(Don’t feel guilty Sarah, like you say yourself it is important for our little ones to see all the emotions that we have and understand that we can show them whenever we need to)


Do you find there is anything you feel you have to be positive about when you really don’t feel that way all the time?
WeeOhana xx