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Getting Dylan’s Education Plan Underway

We finally have started the ball rolling for getting Dylan sorted with a school.
The education board came out and asked us many questions though this wasn’t after me phoning them and gently reminding them that they are meant to have seen a child within 22 days of accepting them.
A lovely and friendly lady came over to meet Dylan and chat all about him so that she could get a full and informed report to help him get through all the stages quickly and hopefully with as little fighting as possible.IMG_0870.jpg

Like the majority of Dylan’s appointments it was pretty tough. You find that you are always talking about what he can’t do and what he should be doing, They ask you if he can do certain things and 9 times out of 10 its a “nope he can’t do that.” I know that this is to get him the help that he needs and to ensure that he gets it but as a parent it is a really tough thing to do.

I was hoping that this appointment would lift a whole load of stress off my shoulders and settle down a whole heap of the worry I was having unfortunately it did not. I understand that the lady who came out to us doesn’t want to give false hope but she said that she couldn’t tell us either way if Dylan would get through the Stages but then also went on to tell us that it isn’t often that she goes out to see children as young as Dylan and it is so obvious to her that they are autistic.
When she left I was so confused. How could she say such contradicting things, though she recently called to let us know that he has got through stage three easily and her boss has told her that she thinks Dylan will get up to Stage five without any questions. Fingers crossed it all goes how it is meant too, and then we can start the fight to get a school close to us and that we think will suit him best.

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She did though also tell me on the phone that her boss thinks he will be best suited to a school for children with severe learning difficulties and we have been told this by several people recently which has been pretty hard to take.
I hadn’t really spent much time thinking about this but it was a rather heavy thing to take and made it clear to me just how hard he does find life, how challenging his behaviour really is and just how much I do for him.

As his mum I do everything for him daily and just get on with it, I don’t put much thought into how much extra support I give him compared to other children his age, but when I think about it, and see other children younger or his age it really makes things hit home. You see them chatting to their parents, shouting for their mum when they are distressed or want something, running about and playing with other children, choosing what to buy in shops, walking down the street beside their parents, turning around when they hear their name.. and many, many other things.

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It’s really tough, really, really tough.
When I heard this, had it confirmed by other professionals who have seem him on many occasions and really thought about how he actually is, it started me on a downward spiral.

-WeeOhana

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DIS- week 4

I cannot get over how fantastically DIS is going. We went along expecting to be told that we would need to come back in a few months and to see if he was ready for it then, but we went and she said she was willing to try. I am so happy that she did.

We have now completed week 4 and have two more to go. Ad came along to this one as I was desperate for him to see how much he had progressed rather than me just telling him and he was in for a huge surprise.
Dylan moved from table to table fantastically today and even carried the item for two of the tasks from one table to the next. Which is something that he hasn’t done before.

Another thing that he did wonderfully was at the  second table she has been trying to encourage Dylan to put items into the ‘done box’ once he has completed the task and is ready to move onto the next one. She has been encouraging him to do this by aiding him in placing them into the box with a lot of hand over hand encouragement, but today he did it himself straight away after finishing his first task and then clapped himself! He then carried on doing this after every task he finished! It was absolutely amazing.

He also did a picture match, and then went on to match an object to a picture which was incredible, he loves doing the colour matching tasks and posting ones.


Dylan has come on leaps and bounds for her, so I am hoping that this will help when he is in nursery next September. With a very strict routine and 1:1 attention I can just cross my fingers he will settle into nursery ok.

We have the education board coming out soon to assess him(blog post soon about this)and get on the right path to ensure that he gets a spot in the school that will suit him best. We already have our hopes set on one .. so fingers crossed we get it as would be a huge weight lifted once we have his school sorted!

Follow the whole journey here-
What is DIS?
DIS Week 1
DIS Week 2
DIS Week 3

-WeeOhana