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DIS- Week 2

This week I had arranged with the lovely therapist that we would meet at the front desk so that we did not have to go into the waiting room with other people. This works well as he is her first appointment of the day, so she can ensure she is there promptly.
We arranged this because people being close to Dylan or looking at him causes him a lot of distress, so to have this 6-week course of DIS working as successfully as we can he needs to in a calm, happy and cooperative mood. 

One thing that I must say is that parking is crazy here, so even though Dylan’s appointment wasn’t until 10:15 I went straight over after dropping Amellia at school! It took about 35 minutes going round and round the car park to finally find a space! Thankfully Dylan is really good in the car and he sat happily waiting until it was time to go in. 

We went in and waited for all of about 2 minutes at the front desk before she appeared, which was fantastic! Dylan was then shown the spade for the sand and he was really excited going through the sets of doors to get to the room. He really enjoys playing in the sand so this is the task that he will always do at the start so that he begins with a positive and knows what to expect… Routine is key!! 

He happily played in the sand, smiled when she sang her little song and it was going fantastically! Though this went well last time too, so I didn’t build my hopes up too much though it did give me a smile! She then showed him the next item.
After a little protest he was more than happy to take part in the next few things. They were posting tasks, and this is something that he really enjoys at home and I had told her last week. She aims to put things around the room that he enjoys so it makes moving from task to task an enjoyable thing for him. After finishing the posting activities, he then had to move to the next table.

He wasn’t as happy changing to this table as he was moving to the previous activities but with some gentle encouragement and sitting him on my knee for a few minutes he was then really enjoying the activities and I was able to move away. He then proceeded to colour match on several different occasions which was fantastic!
Finally, then he moved onto the last task before a quick play in the sand and going home.

This week’s DIS was a huge success and I am hoping that all the others will all go as smoothly now that he knows what to expect when he enters the room.
I think not having to go into the waiting room was a huge help and I am very glad that she has made changes to how she usually greets the children who attend to try and enable this to be a positive experience for Dylan! 

Fingers crossed next week goes as well! =D

If you want to check out what DIS is or how the first week went check them out;
What is DIS?
Week 1

-WeeOhana

 

 

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Sibling Love.

My daughter always makes me proud, and I try to ensure that she is very aware of how proud she makes me. Especially when it comes to her brother.
Yes, like many brother and sisters they fight, dislike each other at times and want the same toy as what the other is playing with.
Though having a brother like Dylan is a lot more challenging than just the usual arguments and misunderstanding that happen between siblings.
It means that Amellia has had to learn a whole new way to play, interact and socialize with him among with many other things.

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She is currently waiting for him to say her name and asks on a regular basis do we think he will ever say her name. This is always a hard questions to answer because as much as we hope he will gain speech soon we cannot guarantee or promise this.
She longs to play duplo with him, kick a football about and get up to mischief together like you would expect from having a sibling around.
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She has adapted how she plays with Dylan, and if she really wants to get his attention she knows how to do this;will wave her hand in front of his face, or show him a train close by and this generally works. He also loves being spun in his chair that she has so she will often spin him in this and it is great when you can hear them both giggling away together. Its times I treasure and they really melt my heart. You learn to really treasure these moments as they are far and few between, so when they do happen they are just magical.
Sometimes though it just makes him angry and lash out. Unfortunately but also thankfully she is getting better at dodging his aggressive swings for her when she does something he doesn’t like, or want to do. She is starting to learn the signs for when he wants to play or for when he just needs left alone.

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Amellia really keeps me thinking positivly about all that is going on in our little family, yes sometimes things are really tough for her and we ensure that she gets time out to be a typical 5-year-old without having to worry about leaving if Dylan dislikes a place or whatever we have chosen to do that day but her understanding when Dylan gets overwhelmed by a place is absolutely magnificent. She will often say to me if it just me taking them to the park that she is ok with leaving if Dylan doesn’t like it when we get there.
I also really admire how proud of her brother she is, when we are out and she is talking to someone she will openly say about her brother having autism and people are generally shocked by how open she is and never quite know what to reply. She will then go on to tell them about Autism and how it affects her brother and that sometimes he will get mad, but he isn’t doing it to be mean, he just can’t understand you and doesn’t know how to tell you what he thinks.

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Yesterday she came home from school and nearly had me in tears.
She came up to me and told me that we don’t need to send Dylan to the school that we have seen for him because she is going to open a school just for children with autism. She is going to make it with a soft play room, sensory room, colouring and a room especially for Dylan with Thomas the Tank engine all over it.
Then she went on to tell us about how she will let them play most of the day so that they don’t get upset and she will try to teach them but if they get upset she will have an Ipad there for them to use to help to calm him down and they can then play letter games on it to help them to learn.

My heart melted.. My little girl amazes me everyday. She is so understanding, caring, loving and wants to just help in every way that she can.
When we explained to her that he will be a little to old when she has done she said that’s ok then mummy, because I can help other children like Dylan and he can come in and help me ❤img_4646

Dylan is so lucky to have a sister like her, and she helps him so much and wouldn’t ever be without him.
She tells me often that when I get older and I can’t look after Dylan anymore she will live with him so that she can keep him safe and make sure that he has the best life he can. She doesn’t want to get married or have any children so that she can always be there for Dylan when he needs her.

Simply put; I think he is the luckiest little brother and she is the most understanding big sister around.

-WeeOhana