10

Child Developmental Clinic

It was my little mans CDC appointment the other day, and I really did not know what to expect from it. I had asked several people who had been to them before and everyone gave me different answers, so I’m going to tell you about my experience and how it all went!

The whole day before I had so much nervous energy I ended up sorting out my whole kitchen, cupboards and the lot!  hadn’t expected to get much sleep that night but I must have worn myself out running about like a lunatic cleaning/sorting/worrying etc as I actually managed a pretty decent sleep! Which was a great start as it gave me the energy I needed to be able to listen and concentrate on what was being said.

We were called from the waiting room and met a lovely lady who explained to us what was going to happen during the 90 minute appointment and that there was six other people there to observe him .. so seven people to watch my little 23 month old boy, that seems like an awful lot right! Well it seemed like even more when you walked into the room and saw them all staring at you..all happy, smiling and welcoming faces just very over whelming! My little man wasn’t sure at all what to think, but they are all very used to that and they had everything under there belt, the winning one for him was bubbles! He loves bubbles, what child doesn’t! They then all introduced themselves one by one; physio therapist, speech therapist, Occupational therapist and so forth! The questions then came as he was being observed by all the people there and as one by one they all went over to him and tried to get him to do whatever it was they wanted.. from walking up stairs to making eye contact.

There was so many questions asked I can hardly remember any of them or how I even answered, my partner told me he was impressed with how well I handled them all and answered them all… So I’m thinking they weren’t really the easiest of questions and that is why I have forgotten the majority of them, mixed in with my anxiety I’m surprised how I even remembered to breath through it all let alone answer all these questions thrown at me!

They then went around the room and gave there feedback to us about there findings; one thing that I was worried about was the muscles in his legs being a little short as he is constantly on his toes and not only just a little bit he goes fully up on his toes and occasionally will even walk on the other side of his toes! His muscles are fine though and we were advised to get him some heavy boots to try and encourage him to walk flat footed otherwise he will end up shortening the muscles in his legs. I am now on a hunt for some cute little boots in a lovely size 5! =]

The speech therapist told me to work on his eye contact and that we would have a few appointments with her shortly to help and give me more ideas on how to get him to give eye contact. Then the others mainly spoke about how to try and help him in the world around him, doing lots of messy play to try and encourage him to get used to different textures and how everything in the world around him is. To try tight clothing when I take him out to see if this helps him to feel settled as its like getting a big hug and close contact. I got lots of ideas of things to do with him to try and help him get used to different textures etc so that he will then hopefully start to eat a lot more things! Did you know that your hands are very closely linked to your mouth, so hopefully when he accepts different feelings on his hands he may start to in his mouth too!

It then came back round to the lady who was asking all the questions and listening to what everyone said; she looked at us very seriously and said that it was Autism.
Even though I had expected this my heart sank.. I just needed to get out of the room. Away from all the eyes watching and all the ears listening and waiting for my reply.
She then went on to tell us that she couldn’t refer us to the Autism Clinic until he was two and a half years old, so that we would have to come back in six months for this and that when we were back we would also discuss where would be best for him to go to school and to apply for schools too then as it was important to get on there lists from the start to make sure he got a place.

I asked a few more questions about how long till certain appointments etc.. then quickly left after thanking them all.

Even though I expected this outcome, it was still a huge shock. I am still coming to terms with it and I’m sure I will be for a very long time. I’m really not sure how to feel about it all.. all I know is that our life has changed forever.

I love him & I always will, no matter what.

WeeOhana xx

 

5

Hearing & Doubts..

I am never going to take either of my children to a hearing test again… though lets start from the start of a very eventful day.

The night before I hardly slept, so many thoughts running through my head. Worries,wonders,what ifs, hows and all those lovely thoughts us parents are subjected too. His appointment also wasn’t until the afternoon, so I filled the morning the best I could to keep myself and him busy. Why though when you want time to go fast it goes slower than you ever thought possible!  We started off having a little look in shops and picking something up for dinner then we decided to head to a forest park for a little walk!
When we pulled up to the park, he decided it was the perfect time to fall asleep so I enjoyed the peace. Peace from the outside I suppose though as I was having a million thoughts a minutes that ended up with a really sore head.. typical. When he woke up we went for a little walk around the forest, he thoroughly enjoyed himself and so did I.

Then it was on-wards to his appointment. How downhill it went from there, the waiting room was full. Every seat was taken and lots of children running about and shouting. Not something I particularly enjoy and neither does he, as soon as we went in he couldn’t handle it. Bright light, lots of people, noise, banging, and pushing. I set him on my lap and talked to him gently in his ear to try and keep him settled the best I could, unfortunately it was all just too much. (He has started to hit himself in the mouth with his hand when he is distressed) On the outside and to onlookers he seemed calm at the start until he started doing this and I was trying to stop him. He kept going and going and more people started to look and one child asked there mum why he was doing it, then he did it so hard he ended up making his mouth bleed, and not even just a little bit. I scooped him up and went on the search for the bathroom to clean him and myself up, so that when we went into the hearing test he would be calm and ready to do whatever they needed. As soon as I had him cleaned up I heard his name being called so off we went down the hallway to see how his hearing was.

It was going lovely, they started with him sitting on my knee and then they rang bells behind him and lots of other things making strange noises and he turned to the majority of them and stilled to others, it was all going so well! The lady told me she was satisfied with his hearing and that he definitely didn’t have any severe hearing problems but she wanted to do another test just to make sure.. little did I know this was more a form of torture.. I had to hold him still while she poked this thing into his ear and did a test. He did not like this one bit, neither did I. He screamed, cried, kicked, bit.. it was horrific. I calmed him down when we left got into the car and he was laughing and smiling, but I had to have a cry. I felt horrible, thought he would hate me .. but he had forgotten about it. Little does he know that she wants me to take him back in three months as she couldn’t do that test properly as he was screaming so loud.. I am not looking forward to that.

Great news is that he isn’t deaf.. though I can’t quite decide if it is great news..
I keep thinking that if he was deaf there are so many things that they can do to solve this, and ahh.. I’m really finding this all so difficult to handle. I suppose that is natural though right? I’m trying to keep my head above water, with a happy face ..I don’t know how swell I’m doing at that part.. its hard to keep yourself a float and everyone else as well.. its tough, its really tough. I must keep going.. on a positive note, we got his appointment for the child developmental team and it is on the 9th of November! So a lot sooner than I expected. which is great news! Less time to over think.. though panic because its so soon!
Answers, or at least some guidance and support is what I need right now. I need to know what I am doing with him is right, that I’m not a terrible mother and it isn’t all my fault.. though I’m not sure those feelings will ever budge..

WeeOhana xxx

0

Leaps?

We all find different things useful and some babies take dislikes or likes to what others like! Children are all individuals, even when they are little tiny newborns! People seem to think that they have to follow certain routines, do certain things and even follow a line of weigh gain! To me, this is madness! My little man will roll over when he wants, talk when he wants, cry when he wants and weigh as much as he wants! In a group that I am in people are even obsessed with this “Leap” thing.. now I don’t know much about it.. but they are all hooked on the idea that there babies go through certain leaps at certain ages and they last for a said amount of time. For example they are mainly all going through “leap 4”? at the moment! I don’t have a clue what it means, but from reading what they say.. it basically means there baby cries constantly with nothing settling them.. they blame this all on leap 4. Some of them seem to be going crazy asking others for advice on what to do… my advice.. cuddle them, show them a toy, take them for a walk, change there nappy, give them some more milk.. or all the normal things that we try! They always come back with.. no they had milk an hour ago, nappy just changed they just wont stop crying.. to me this sounds crazy that they haven’t tried more milk! It to me is what I go to after trying all of the above, and generally it works straight away and he goes fast asleep! Babies can be hungry whenever they want, they are growing in all ways and that takes a lot of work! They all seem to think that there babies can only eat every four hours and will not be hungry again. Madness, right? Maybe because they have got these ideas planted in there minds, and thoughts they are obsessing and then stressing out about it so the baby then picks up on the bad vibes and upset of there mummies so it upsets them! I don’t know.. Do any of you guys follow this leap idea? Care to enlighten me about it! Do you agree that all babies should do the same things, at the same time and follow the weight & height “line”? Am I just extremely lucky that for the past few weeks my baby boy hasn’t been screaming his head off all the time without anything comforting him?

I would love to hear your thoughts!

WeeOhana x

12

Sick little girl :,(

My house today is scarily quiet. My poor little three year old is sick, and for the first time in a long time is taking a nap. I’m sure those of you who have children know how painful it is to see them ill, you just want to have it yourself instead! =[

At 3am this morning she came into my bedroom and crawled up onto the bed, I thought she was up to her old tricks until she touched me and her little palms were roasting hot, then upon looking at her little face her cheeks, nose and forehead were bright red. Poor little soul! I then got her to lay on the bed while I went to get the thermometer and some calpol! We have a snazzy little one that you don’t have to put against your head, you hold it in front of there forehead and if they have a high fever its red, then orange for a little over and green whenever the temperature is fine. She looked at me all frail looking and said “mummy please don’t let it go red” Sure enough it went red, my poor little baby! So I took off her pjs and gave her some calpol! She quickly fell asleep and I was hoping she would be her usual energetic self this morning .. She wasn’t :,( she has now spent the majority of her day on the floor in her duvet either fighting sleep or sleeping! She is like a little furnace! Also really unlike her she doesn’t want to eat anything at all.. not even ice cream and I’m generally begged for that daily!

I feel completely useless as nothing I can do to make her feel better.. all she wants to do is cuddle then complains she’s too warm so gets annoyed then wants to cuddle again after five mins! I so hope tomorrow she wakes up her normal hyper self or we will be off to the doctors! 39.2 tempurate, bless her :,( image

Anyway I must dash and try and hunt out things to help her and to look after her!
Any thing that you guys do to help your little ones feel more comfortable? Help!! 😦

Weeohana xxx